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Engaging Patients and Caregivers Managing Rare Diseases to Improve the Methods of Clinical Guideline Development: A Research Protocol

BACKGROUND: Clinical guidelines provide systematically developed recommendations for deciding on appropriate health care options for specific conditions and clinical circumstances. Up until recently, patients and caregivers have rarely been included in the process of developing care guidelines. OBJE...

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Detalles Bibliográficos
Autores principales:	Khodyakov, Dmitry, Kinnett, Kathi, Grant, Sean, Lucas, Ann, Martin, Ann, Denger, Brian, Peay, Holly, Coulter, Ian, Fink, Arlene
Formato:	Online Artículo Texto
Lenguaje:	English
Publicado:	JMIR Publications 2017
Materias:	Protocol
Acceso en línea:	https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5429434/ https://www.ncbi.nlm.nih.gov/pubmed/28455279 http://dx.doi.org/10.2196/resprot.6902

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