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Experiences of supportive care when waiting for a lung re-transplantation
OBJECTIVES: Lung transplant patients and their next of kin share the experiences of illness but little is known in the face of a lung re-transplantation. To describe patients’ and next of kin’s experiences of supportive care while awaiting lung re-transplantation and the objective was to highlight a...
Autores principales: | , , |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
SAGE Publications
2017
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5433791/ https://www.ncbi.nlm.nih.gov/pubmed/28540044 http://dx.doi.org/10.1177/2050312117697151 |
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author | Ivarsson, Bodil Ingemansson, Richard Sjöberg, Trygve |
author_facet | Ivarsson, Bodil Ingemansson, Richard Sjöberg, Trygve |
author_sort | Ivarsson, Bodil |
collection | PubMed |
description | OBJECTIVES: Lung transplant patients and their next of kin share the experiences of illness but little is known in the face of a lung re-transplantation. To describe patients’ and next of kin’s experiences of supportive care while awaiting lung re-transplantation and the objective was to highlight a small group with special circumstances and needs. METHODS: Using qualitative content analysis, seven adult patients and seven next of kin were consecutively selected from a regional lung transplantation centre and individually interviewed shortly after decision about lung re-transplantation. RESULTS: The experiences of supportive care were captured in one main category: ‘once again haunted by death’ and three sub-categories: ‘when life turns and death once again snorts down your neck’, ‘the importance of information’, and ‘perceptions of support’. A complex interaction between the experience of waiting, and communication patterns, emotional states, and social support was shown. CONCLUSION: This study provides insights into the complex interaction between the experience of waiting for a second lung transplant and communication patterns, emotional states, social support and social roles between patients, next of kin, healthcare professionals, and the health and social welfare system. There is a need for developing supportive care programme to achieve the best possible care. |
format | Online Article Text |
id | pubmed-5433791 |
institution | National Center for Biotechnology Information |
language | English |
publishDate | 2017 |
publisher | SAGE Publications |
record_format | MEDLINE/PubMed |
spelling | pubmed-54337912017-05-24 Experiences of supportive care when waiting for a lung re-transplantation Ivarsson, Bodil Ingemansson, Richard Sjöberg, Trygve SAGE Open Med Original Article OBJECTIVES: Lung transplant patients and their next of kin share the experiences of illness but little is known in the face of a lung re-transplantation. To describe patients’ and next of kin’s experiences of supportive care while awaiting lung re-transplantation and the objective was to highlight a small group with special circumstances and needs. METHODS: Using qualitative content analysis, seven adult patients and seven next of kin were consecutively selected from a regional lung transplantation centre and individually interviewed shortly after decision about lung re-transplantation. RESULTS: The experiences of supportive care were captured in one main category: ‘once again haunted by death’ and three sub-categories: ‘when life turns and death once again snorts down your neck’, ‘the importance of information’, and ‘perceptions of support’. A complex interaction between the experience of waiting, and communication patterns, emotional states, and social support was shown. CONCLUSION: This study provides insights into the complex interaction between the experience of waiting for a second lung transplant and communication patterns, emotional states, social support and social roles between patients, next of kin, healthcare professionals, and the health and social welfare system. There is a need for developing supportive care programme to achieve the best possible care. SAGE Publications 2017-03-09 /pmc/articles/PMC5433791/ /pubmed/28540044 http://dx.doi.org/10.1177/2050312117697151 Text en © The Author(s) 2017 http://creativecommons.org/licenses/by-nc/3.0/ This article is distributed under the terms of the Creative Commons Attribution-NonCommercial 3.0 License (http://www.creativecommons.org/licenses/by-nc/3.0/) which permits non-commercial use, reproduction and distribution of the work without further permission provided the original work is attributed as specified on the SAGE and Open Access page(https://us.sagepub.com/en-us/nam/open-access-at-sage). |
spellingShingle | Original Article Ivarsson, Bodil Ingemansson, Richard Sjöberg, Trygve Experiences of supportive care when waiting for a lung re-transplantation |
title | Experiences of supportive care when waiting for a lung re-transplantation |
title_full | Experiences of supportive care when waiting for a lung re-transplantation |
title_fullStr | Experiences of supportive care when waiting for a lung re-transplantation |
title_full_unstemmed | Experiences of supportive care when waiting for a lung re-transplantation |
title_short | Experiences of supportive care when waiting for a lung re-transplantation |
title_sort | experiences of supportive care when waiting for a lung re-transplantation |
topic | Original Article |
url | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5433791/ https://www.ncbi.nlm.nih.gov/pubmed/28540044 http://dx.doi.org/10.1177/2050312117697151 |
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