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Time, timing, talking and training: findings from an exploratory action research study to improve quality of end of life care for minority ethnic kidney patients

Background. With an ageing and increasingly diverse population at risk from rising levels of obesity, diabetes and cardiovascular disease, including kidney complications, there is a need to provide quality care at all stages in the care pathway including at the end of life and to all patients. Aim....

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Autores principales: Wilkinson, Emma, Randhawa, Gurch, Brown, Edwina, Da Silva Gane, Maria, Stoves, John, Warwick, Graham, Mir, Tahira, Magee, Regina, Sharman, Sue, Farrington, Ken
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Oxford University Press 2017
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5466116/
https://www.ncbi.nlm.nih.gov/pubmed/28616221
http://dx.doi.org/10.1093/ckj/sfw151
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author Wilkinson, Emma
Randhawa, Gurch
Brown, Edwina
Da Silva Gane, Maria
Stoves, John
Warwick, Graham
Mir, Tahira
Magee, Regina
Sharman, Sue
Farrington, Ken
author_facet Wilkinson, Emma
Randhawa, Gurch
Brown, Edwina
Da Silva Gane, Maria
Stoves, John
Warwick, Graham
Mir, Tahira
Magee, Regina
Sharman, Sue
Farrington, Ken
author_sort Wilkinson, Emma
collection PubMed
description Background. With an ageing and increasingly diverse population at risk from rising levels of obesity, diabetes and cardiovascular disease, including kidney complications, there is a need to provide quality care at all stages in the care pathway including at the end of life and to all patients. Aim. This study purposively explored South Asian patients’ experiences of kidney end of life care to understand how services can be delivered in a way that meets diverse patient needs. Methods. Within an action research design 14 focus groups (45 care providers) of kidney care providers discussed the recruitment and analysis of individual interviews with 16 South Asian kidney patients (eight men, eight women). Emergent themes from the focus groups were analysed thematically. The research took place at four UK centres providing kidney care to diverse populations: West London, Luton, Leicester and Bradford. Results. Key themes related to time and the timing of discussions about end of life care and the factors that place limitations on patients and providers in talking about end of life care. Lack of time and confidence of nurses in areas of kidney care, individual attitudes and workforce composition influence whether and how patients have access to end of life care through kidney services. Conclusion. Training, team work and time to discuss overarching issues (including timing and communication about end of life) with colleagues could support service providers to facilitate access and delivery of end of life care to this group of patients.
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spelling pubmed-54661162017-06-14 Time, timing, talking and training: findings from an exploratory action research study to improve quality of end of life care for minority ethnic kidney patients Wilkinson, Emma Randhawa, Gurch Brown, Edwina Da Silva Gane, Maria Stoves, John Warwick, Graham Mir, Tahira Magee, Regina Sharman, Sue Farrington, Ken Clin Kidney J End of Life Care Background. With an ageing and increasingly diverse population at risk from rising levels of obesity, diabetes and cardiovascular disease, including kidney complications, there is a need to provide quality care at all stages in the care pathway including at the end of life and to all patients. Aim. This study purposively explored South Asian patients’ experiences of kidney end of life care to understand how services can be delivered in a way that meets diverse patient needs. Methods. Within an action research design 14 focus groups (45 care providers) of kidney care providers discussed the recruitment and analysis of individual interviews with 16 South Asian kidney patients (eight men, eight women). Emergent themes from the focus groups were analysed thematically. The research took place at four UK centres providing kidney care to diverse populations: West London, Luton, Leicester and Bradford. Results. Key themes related to time and the timing of discussions about end of life care and the factors that place limitations on patients and providers in talking about end of life care. Lack of time and confidence of nurses in areas of kidney care, individual attitudes and workforce composition influence whether and how patients have access to end of life care through kidney services. Conclusion. Training, team work and time to discuss overarching issues (including timing and communication about end of life) with colleagues could support service providers to facilitate access and delivery of end of life care to this group of patients. Oxford University Press 2017-06 2017-02-16 /pmc/articles/PMC5466116/ /pubmed/28616221 http://dx.doi.org/10.1093/ckj/sfw151 Text en © The Author 2017. Published by Oxford University Press on behalf of ERA-EDTA. http://creativecommons.org/licenses/by-nc/4.0/ This is an Open Access article distributed under the terms of the Creative Commons Attribution Non-Commercial License (http://creativecommons.org/licenses/by-nc/4.0/), which permits non-commercial re-use, distribution, and reproduction in any medium, provided the original work is properly cited. For commercial re-use, please contact journals.permissions@oup.com
spellingShingle End of Life Care
Wilkinson, Emma
Randhawa, Gurch
Brown, Edwina
Da Silva Gane, Maria
Stoves, John
Warwick, Graham
Mir, Tahira
Magee, Regina
Sharman, Sue
Farrington, Ken
Time, timing, talking and training: findings from an exploratory action research study to improve quality of end of life care for minority ethnic kidney patients
title Time, timing, talking and training: findings from an exploratory action research study to improve quality of end of life care for minority ethnic kidney patients
title_full Time, timing, talking and training: findings from an exploratory action research study to improve quality of end of life care for minority ethnic kidney patients
title_fullStr Time, timing, talking and training: findings from an exploratory action research study to improve quality of end of life care for minority ethnic kidney patients
title_full_unstemmed Time, timing, talking and training: findings from an exploratory action research study to improve quality of end of life care for minority ethnic kidney patients
title_short Time, timing, talking and training: findings from an exploratory action research study to improve quality of end of life care for minority ethnic kidney patients
title_sort time, timing, talking and training: findings from an exploratory action research study to improve quality of end of life care for minority ethnic kidney patients
topic End of Life Care
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5466116/
https://www.ncbi.nlm.nih.gov/pubmed/28616221
http://dx.doi.org/10.1093/ckj/sfw151
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