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When should social service referral be considered in phenylketonuria?
Lifelong low-phenylalanine (Phe) dietary management is the foundation of care in phenylketonuria (PKU). However, strict monitoring of food intake places a burden on patients and their caregivers, and adherence to the required diet frequently decreases in later childhood and adolescence. Rarely, pare...
Autores principales: | van Rijn, Margreet, Ahring, Kirsten, Bélanger-Quintana, Amaya, Dokoupil, Kathi, Ozel, Hulya Gokmen, Lammardo, Anna Maria, Robert, Martine, Rocha, Júlio C., MacDonald, Anita |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
Elsevier
2015
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5471161/ https://www.ncbi.nlm.nih.gov/pubmed/28649533 http://dx.doi.org/10.1016/j.ymgmr.2015.01.002 |
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