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Parent Perspective on Care Coordination Services for Their Child with Medical Complexity

The overarching goal of care coordination is communication and co-management across settings. Children with medical complexity require care from multiple services and providers, and the many benefits of care coordination on health and patient experience outcomes have been documented. Despite these f...

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Autores principales: Cady, Rhonda G., Belew, John L.
Formato: Online Artículo Texto
Lenguaje:English
Publicado: MDPI 2017
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5483620/
https://www.ncbi.nlm.nih.gov/pubmed/28587274
http://dx.doi.org/10.3390/children4060045
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author Cady, Rhonda G.
Belew, John L.
author_facet Cady, Rhonda G.
Belew, John L.
author_sort Cady, Rhonda G.
collection PubMed
description The overarching goal of care coordination is communication and co-management across settings. Children with medical complexity require care from multiple services and providers, and the many benefits of care coordination on health and patient experience outcomes have been documented. Despite these findings, parents still report their greatest challenge is communication gaps. When this occurs, parents assume responsibility for aggregating and sharing health information across providers and settings. A new primary-specialty care coordination partnership model for children with medical complexity works to address these challenges and bridge communication gaps. During the first year of the new partnership, parents participated in focus groups to better understand how they perceive communication and collaboration between the providers and services delivering care for their medically complex child. Our findings from these sessions reflect the current literature and highlight additional challenges of rural families, as seen from the perspective of the parents. We found that parents appreciate when professional care coordination is provided, but this is often the exception and not the norm. Additionally, parents feel that the local health system’s inability to care for their medically complex child results in unnecessary trips to urban-based specialty care. These gaps require a system-level approach to care coordination and, consequently, new paradigms for delivery are urgently needed.
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spelling pubmed-54836202017-06-28 Parent Perspective on Care Coordination Services for Their Child with Medical Complexity Cady, Rhonda G. Belew, John L. Children (Basel) Communication The overarching goal of care coordination is communication and co-management across settings. Children with medical complexity require care from multiple services and providers, and the many benefits of care coordination on health and patient experience outcomes have been documented. Despite these findings, parents still report their greatest challenge is communication gaps. When this occurs, parents assume responsibility for aggregating and sharing health information across providers and settings. A new primary-specialty care coordination partnership model for children with medical complexity works to address these challenges and bridge communication gaps. During the first year of the new partnership, parents participated in focus groups to better understand how they perceive communication and collaboration between the providers and services delivering care for their medically complex child. Our findings from these sessions reflect the current literature and highlight additional challenges of rural families, as seen from the perspective of the parents. We found that parents appreciate when professional care coordination is provided, but this is often the exception and not the norm. Additionally, parents feel that the local health system’s inability to care for their medically complex child results in unnecessary trips to urban-based specialty care. These gaps require a system-level approach to care coordination and, consequently, new paradigms for delivery are urgently needed. MDPI 2017-06-06 /pmc/articles/PMC5483620/ /pubmed/28587274 http://dx.doi.org/10.3390/children4060045 Text en © 2017 by the authors. Licensee MDPI, Basel, Switzerland. This article is an open access article distributed under the terms and conditions of the Creative Commons Attribution (CC BY) license (http://creativecommons.org/licenses/by/4.0/).
spellingShingle Communication
Cady, Rhonda G.
Belew, John L.
Parent Perspective on Care Coordination Services for Their Child with Medical Complexity
title Parent Perspective on Care Coordination Services for Their Child with Medical Complexity
title_full Parent Perspective on Care Coordination Services for Their Child with Medical Complexity
title_fullStr Parent Perspective on Care Coordination Services for Their Child with Medical Complexity
title_full_unstemmed Parent Perspective on Care Coordination Services for Their Child with Medical Complexity
title_short Parent Perspective on Care Coordination Services for Their Child with Medical Complexity
title_sort parent perspective on care coordination services for their child with medical complexity
topic Communication
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5483620/
https://www.ncbi.nlm.nih.gov/pubmed/28587274
http://dx.doi.org/10.3390/children4060045
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