Creating a Registry for Patients with Thoracic Outlet Syndrome

The creation of any patient database requires substantial planning. In the case of thoracic outlet syndrome, which is a rare disease, the Society for Vascular Surgery has defined reporting standards to serve as an outline for the creation of a patient registry. Prior to undertaking this task, it is...

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Detalles Bibliográficos
Autor principal: Humphries, Misty D.
Formato: Online Artículo Texto
Lenguaje:English
Publicado: MDPI 2017
Materias:
Article
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5489956/
https://www.ncbi.nlm.nih.gov/pubmed/28629121
http://dx.doi.org/10.3390/diagnostics7020036
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author Humphries, Misty D.
author_facet Humphries, Misty D.
author_sort Humphries, Misty D.
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description The creation of any patient database requires substantial planning. In the case of thoracic outlet syndrome, which is a rare disease, the Society for Vascular Surgery has defined reporting standards to serve as an outline for the creation of a patient registry. Prior to undertaking this task, it is critical that designers understand the basics of registry planning and a priori establish plans for data collection and analysis.
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spelling pubmed-54899562017-06-30 Creating a Registry for Patients with Thoracic Outlet Syndrome Humphries, Misty D. Diagnostics (Basel) Article The creation of any patient database requires substantial planning. In the case of thoracic outlet syndrome, which is a rare disease, the Society for Vascular Surgery has defined reporting standards to serve as an outline for the creation of a patient registry. Prior to undertaking this task, it is critical that designers understand the basics of registry planning and a priori establish plans for data collection and analysis. MDPI 2017-06-17 /pmc/articles/PMC5489956/ /pubmed/28629121 http://dx.doi.org/10.3390/diagnostics7020036 Text en © 2017 by the author. Licensee MDPI, Basel, Switzerland. This article is an open access article distributed under the terms and conditions of the Creative Commons Attribution (CC BY) license (http://creativecommons.org/licenses/by/4.0/).
spellingShingle Article
Humphries, Misty D.
Creating a Registry for Patients with Thoracic Outlet Syndrome
title Creating a Registry for Patients with Thoracic Outlet Syndrome
title_full Creating a Registry for Patients with Thoracic Outlet Syndrome
title_fullStr Creating a Registry for Patients with Thoracic Outlet Syndrome
title_full_unstemmed Creating a Registry for Patients with Thoracic Outlet Syndrome
title_short Creating a Registry for Patients with Thoracic Outlet Syndrome
title_sort creating a registry for patients with thoracic outlet syndrome
topic Article
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5489956/
https://www.ncbi.nlm.nih.gov/pubmed/28629121
http://dx.doi.org/10.3390/diagnostics7020036
work_keys_str_mv AT humphriesmistyd creatingaregistryforpatientswiththoracicoutletsyndrome

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