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Cataloguing Treatments Discussed and Used in Online Autism Communities

A large number of patients discuss treatments in online health communities (OHCs). One research question of interest to health researchers is whether treatments being discussed in OHCs are eventually used by community members in their real lives. In this paper, we rely on machine learning methods to...

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Detalles Bibliográficos
Autores principales: Zhang, Shaodian, Kang, Tian, Qiu, Lin, Zhang, Weinan, Yu, Yong, Elhadad, Noémie
Formato: Online Artículo Texto
Lenguaje:English
Publicado: 2017
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5516208/
https://www.ncbi.nlm.nih.gov/pubmed/28736777
http://dx.doi.org/10.1145/3038912.3052661
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author Zhang, Shaodian
Kang, Tian
Qiu, Lin
Zhang, Weinan
Yu, Yong
Elhadad, Noémie
author_facet Zhang, Shaodian
Kang, Tian
Qiu, Lin
Zhang, Weinan
Yu, Yong
Elhadad, Noémie
author_sort Zhang, Shaodian
collection PubMed
description A large number of patients discuss treatments in online health communities (OHCs). One research question of interest to health researchers is whether treatments being discussed in OHCs are eventually used by community members in their real lives. In this paper, we rely on machine learning methods to automatically identify attributions of mentions of treatments from an online autism community. The context of our work is online autism communities, where parents exchange support for the care of their children with autism spectrum disorder. Our methods are able to distinguish discussions of treatments that are associated with patients, caregivers, and others, as well as identify whether a treatment is actually taken. We investigate treatments that are not just discussed but also used by patients according to two types of content analysis, cross-sectional and longitudinal. The treatments identified through our content analysis help create a catalogue of real-world treatments. This study results lay the foundation for future research to compare real-world drug usage with established clinical guidelines.
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spelling pubmed-55162082017-07-19 Cataloguing Treatments Discussed and Used in Online Autism Communities Zhang, Shaodian Kang, Tian Qiu, Lin Zhang, Weinan Yu, Yong Elhadad, Noémie Proc Int World Wide Web Conf Article A large number of patients discuss treatments in online health communities (OHCs). One research question of interest to health researchers is whether treatments being discussed in OHCs are eventually used by community members in their real lives. In this paper, we rely on machine learning methods to automatically identify attributions of mentions of treatments from an online autism community. The context of our work is online autism communities, where parents exchange support for the care of their children with autism spectrum disorder. Our methods are able to distinguish discussions of treatments that are associated with patients, caregivers, and others, as well as identify whether a treatment is actually taken. We investigate treatments that are not just discussed but also used by patients according to two types of content analysis, cross-sectional and longitudinal. The treatments identified through our content analysis help create a catalogue of real-world treatments. This study results lay the foundation for future research to compare real-world drug usage with established clinical guidelines. 2017-04 /pmc/articles/PMC5516208/ /pubmed/28736777 http://dx.doi.org/10.1145/3038912.3052661 Text en http://creativecommons.org/licenses/by/4.0/ published under Creative Commons CC BY 4.0 License.
spellingShingle Article
Zhang, Shaodian
Kang, Tian
Qiu, Lin
Zhang, Weinan
Yu, Yong
Elhadad, Noémie
Cataloguing Treatments Discussed and Used in Online Autism Communities
title Cataloguing Treatments Discussed and Used in Online Autism Communities
title_full Cataloguing Treatments Discussed and Used in Online Autism Communities
title_fullStr Cataloguing Treatments Discussed and Used in Online Autism Communities
title_full_unstemmed Cataloguing Treatments Discussed and Used in Online Autism Communities
title_short Cataloguing Treatments Discussed and Used in Online Autism Communities
title_sort cataloguing treatments discussed and used in online autism communities
topic Article
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5516208/
https://www.ncbi.nlm.nih.gov/pubmed/28736777
http://dx.doi.org/10.1145/3038912.3052661
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