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Cohort profile: a data linkage cohort to examine health service profiles of people with intellectual disability in New South Wales, Australia

PURPOSE: People with intellectual disability are a minority group who experience poorer physical and mental health than the general population and have difficulty accessing healthcare services. There is lack of knowledge about healthcare service needs and gaps experienced by people with intellectual...

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Autores principales: Reppermund, Simone, Srasuebkul, Preeyaporn, Heintze, Theresa, Reeve, Rebecca, Dean, Kimberlie, Emerson, Eric, Coyne, David, Snoyman, Phillip, Baldry, Eileen, Dowse, Leanne, Szanto, Tracey, Sara, Grant, Florio, Tony, Trollor, Julian N
Formato: Online Artículo Texto
Lenguaje:English
Publicado: BMJ Publishing Group 2017
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5541414/
https://www.ncbi.nlm.nih.gov/pubmed/28404614
http://dx.doi.org/10.1136/bmjopen-2016-015627
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author Reppermund, Simone
Srasuebkul, Preeyaporn
Heintze, Theresa
Reeve, Rebecca
Dean, Kimberlie
Emerson, Eric
Coyne, David
Snoyman, Phillip
Baldry, Eileen
Dowse, Leanne
Szanto, Tracey
Sara, Grant
Florio, Tony
Trollor, Julian N
author_facet Reppermund, Simone
Srasuebkul, Preeyaporn
Heintze, Theresa
Reeve, Rebecca
Dean, Kimberlie
Emerson, Eric
Coyne, David
Snoyman, Phillip
Baldry, Eileen
Dowse, Leanne
Szanto, Tracey
Sara, Grant
Florio, Tony
Trollor, Julian N
author_sort Reppermund, Simone
collection PubMed
description PURPOSE: People with intellectual disability are a minority group who experience poorer physical and mental health than the general population and have difficulty accessing healthcare services. There is lack of knowledge about healthcare service needs and gaps experienced by people with intellectual disability. This study aims to interrogate a large linked administrative data set containing hospital admissions, presentations to emergency departments (ED) and mortality data to provide evidence to inform the development of improved health and mental health services for this population. PARTICIPANTS: A retrospective cohort of people with intellectual disability (n=51 452) from New South Wales (NSW), Australia, to explore health and mental health profiles, mortality, pattern of health service use and associated costs between 2005 and 2013. The cohort is drawn from: the Disability Services Minimum Data Set; Admitted Patients Data Collection; Emergency Department Data Collection, Australian Bureau of Statistics Death Registry and Registry of Births, Deaths and Marriages. Mental health service usage among those with intellectual disability will be compared to a cohort of people who used mental health services (n=1 073 139) and service usage other than for mental health will be compared with published data from the general population. FINDINGS TO DATE: The median age of the cohort was 24 at the time of the last hospital admission and 21 at the last ED presentation. The cohort has a higher proportion of men than women and accounts for 0.6% of the NSW population in 2011. Over 70% had up to 5 ED presentations and hospitalisations between 2005 and 2012. A high proportion of people with intellectual disability live in the most disadvantaged neighbourhoods. FUTURE PLANS: Results will be used to inform the development of more responsive healthcare, including improved interactions between health, social and disability supports. More generally, the results will assist the development of more inclusive policy frameworks for people with intellectual disability.
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spelling pubmed-55414142017-08-07 Cohort profile: a data linkage cohort to examine health service profiles of people with intellectual disability in New South Wales, Australia Reppermund, Simone Srasuebkul, Preeyaporn Heintze, Theresa Reeve, Rebecca Dean, Kimberlie Emerson, Eric Coyne, David Snoyman, Phillip Baldry, Eileen Dowse, Leanne Szanto, Tracey Sara, Grant Florio, Tony Trollor, Julian N BMJ Open Mental Health PURPOSE: People with intellectual disability are a minority group who experience poorer physical and mental health than the general population and have difficulty accessing healthcare services. There is lack of knowledge about healthcare service needs and gaps experienced by people with intellectual disability. This study aims to interrogate a large linked administrative data set containing hospital admissions, presentations to emergency departments (ED) and mortality data to provide evidence to inform the development of improved health and mental health services for this population. PARTICIPANTS: A retrospective cohort of people with intellectual disability (n=51 452) from New South Wales (NSW), Australia, to explore health and mental health profiles, mortality, pattern of health service use and associated costs between 2005 and 2013. The cohort is drawn from: the Disability Services Minimum Data Set; Admitted Patients Data Collection; Emergency Department Data Collection, Australian Bureau of Statistics Death Registry and Registry of Births, Deaths and Marriages. Mental health service usage among those with intellectual disability will be compared to a cohort of people who used mental health services (n=1 073 139) and service usage other than for mental health will be compared with published data from the general population. FINDINGS TO DATE: The median age of the cohort was 24 at the time of the last hospital admission and 21 at the last ED presentation. The cohort has a higher proportion of men than women and accounts for 0.6% of the NSW population in 2011. Over 70% had up to 5 ED presentations and hospitalisations between 2005 and 2012. A high proportion of people with intellectual disability live in the most disadvantaged neighbourhoods. FUTURE PLANS: Results will be used to inform the development of more responsive healthcare, including improved interactions between health, social and disability supports. More generally, the results will assist the development of more inclusive policy frameworks for people with intellectual disability. BMJ Publishing Group 2017-04-12 /pmc/articles/PMC5541414/ /pubmed/28404614 http://dx.doi.org/10.1136/bmjopen-2016-015627 Text en Published by the BMJ Publishing Group Limited. For permission to use (where not already granted under a licence) please go to http://www.bmj.com/company/products-services/rights-and-licensing/ This is an Open Access article distributed in accordance with the Creative Commons Attribution Non Commercial (CC BY-NC 4.0) license, which permits others to distribute, remix, adapt, build upon this work non-commercially, and license their derivative works on different terms, provided the original work is properly cited and the use is non-commercial. See: http://creativecommons.org/licenses/by-nc/4.0/
spellingShingle Mental Health
Reppermund, Simone
Srasuebkul, Preeyaporn
Heintze, Theresa
Reeve, Rebecca
Dean, Kimberlie
Emerson, Eric
Coyne, David
Snoyman, Phillip
Baldry, Eileen
Dowse, Leanne
Szanto, Tracey
Sara, Grant
Florio, Tony
Trollor, Julian N
Cohort profile: a data linkage cohort to examine health service profiles of people with intellectual disability in New South Wales, Australia
title Cohort profile: a data linkage cohort to examine health service profiles of people with intellectual disability in New South Wales, Australia
title_full Cohort profile: a data linkage cohort to examine health service profiles of people with intellectual disability in New South Wales, Australia
title_fullStr Cohort profile: a data linkage cohort to examine health service profiles of people with intellectual disability in New South Wales, Australia
title_full_unstemmed Cohort profile: a data linkage cohort to examine health service profiles of people with intellectual disability in New South Wales, Australia
title_short Cohort profile: a data linkage cohort to examine health service profiles of people with intellectual disability in New South Wales, Australia
title_sort cohort profile: a data linkage cohort to examine health service profiles of people with intellectual disability in new south wales, australia
topic Mental Health
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5541414/
https://www.ncbi.nlm.nih.gov/pubmed/28404614
http://dx.doi.org/10.1136/bmjopen-2016-015627
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