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The European Cancer Patient’s Bill of Rights, update and implementation 2016
In this implementation phase of the European Cancer Patient’s Bill of Rights (BoR), we confirm the following three patient-centred principles that underpin this initiative: 1. The right of every European citizen to receive the most accurate information and to be proactively involved in his/her care....
Autores principales: | , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
ESMO Open
2017
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5548978/ https://www.ncbi.nlm.nih.gov/pubmed/28848664 http://dx.doi.org/10.1136/esmoopen-2016-000127 |
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author | Højgaard, Liselotte Löwenberg, Bob Selby, Peter Lawler, Mark Banks, Ian Law, Kate Albreht, Tit Armand, Jean-Pierre Barbacid, Mariano Barzach, Michèle Bergh, Jonas Cameron, David Conte, Pierfranco de Braud, Filippo de Gramont, Aimery De Lorenzo, Francesco Diehl, Volker Diler, Sarper Erdem, Sema Geissler, Jan Gore-Booth, Jola Henning, Geoffrey Horgan, Denis Jassem, Jacek Johnson, Peter Kaasa, Stein Kapitein, Peter Karjalainen, Sakari Kelly, Joan Kienesberger, Anita La Vecchia, Carlo Lacombe, Denis Lindahl, Tomas Luzzatto, Lucio Malby, Rebecca Mastris, Ken Meunier, Françoise Murphy, Martin Naredi, Peter Nurse, Paul Oliver, Kathy Pearce, Jonathan Pelouchov, Jana Piccart, Martine Pinedo, Bob Spurrier-Bernard, Gilly Sullivan, Richard Tabernero, Josep Van de Velde, Cornelis van Herk, Bert Vedsted, Peter Waldmann, Anita Weller, David Wilking, Nils Wilson, Roger Yared, Wendy Zielinski, Christoph zur Hausen, Harald Le Chevalier, Thierry Johnston, Patrick |
author_facet | Højgaard, Liselotte Löwenberg, Bob Selby, Peter Lawler, Mark Banks, Ian Law, Kate Albreht, Tit Armand, Jean-Pierre Barbacid, Mariano Barzach, Michèle Bergh, Jonas Cameron, David Conte, Pierfranco de Braud, Filippo de Gramont, Aimery De Lorenzo, Francesco Diehl, Volker Diler, Sarper Erdem, Sema Geissler, Jan Gore-Booth, Jola Henning, Geoffrey Horgan, Denis Jassem, Jacek Johnson, Peter Kaasa, Stein Kapitein, Peter Karjalainen, Sakari Kelly, Joan Kienesberger, Anita La Vecchia, Carlo Lacombe, Denis Lindahl, Tomas Luzzatto, Lucio Malby, Rebecca Mastris, Ken Meunier, Françoise Murphy, Martin Naredi, Peter Nurse, Paul Oliver, Kathy Pearce, Jonathan Pelouchov, Jana Piccart, Martine Pinedo, Bob Spurrier-Bernard, Gilly Sullivan, Richard Tabernero, Josep Van de Velde, Cornelis van Herk, Bert Vedsted, Peter Waldmann, Anita Weller, David Wilking, Nils Wilson, Roger Yared, Wendy Zielinski, Christoph zur Hausen, Harald Le Chevalier, Thierry Johnston, Patrick |
author_sort | Højgaard, Liselotte |
collection | PubMed |
description | In this implementation phase of the European Cancer Patient’s Bill of Rights (BoR), we confirm the following three patient-centred principles that underpin this initiative: 1. The right of every European citizen to receive the most accurate information and to be proactively involved in his/her care. 2. The right of every European citizen to optimal and timely access to a diagnosis and to appropriate specialised care, underpinned by research and innovation. 3. The right of every European citizen to receive care in health systems that ensure the best possible cancer prevention, the earliest possible diagnosis of their cancer, improved outcomes, patient rehabilitation, best quality of life and affordable health care. The key aspects of working towards implementing the BoR are: Agree our high-level goal. The vision of 70% long-term survival for patients with cancer in 2035, promoting cancer prevention and cancer control and the associated progress in ensuring good patient experience and quality of life. Establish the major mechanisms to underpin its delivery. (1) The systematic and rigorous sharing of best practice between and across European cancer healthcare systems and (2) the active promotion of Research and Innovation focused on improving outcomes; (3) Improving access to new and established cancer care by sharing best practice in the development, approval, procurement and reimbursement of cancer diagnostic tests and treatments. Work with other organisations to bring into being a Europe based centre that will (1) systematically identify, evaluate and validate and disseminate best practice in cancer management for the different countries and regions and (2) promote Research and Innovation and its translation to maximise its impact to improve outcomes. |
format | Online Article Text |
id | pubmed-5548978 |
institution | National Center for Biotechnology Information |
language | English |
publishDate | 2017 |
publisher | ESMO Open |
record_format | MEDLINE/PubMed |
spelling | pubmed-55489782017-08-28 The European Cancer Patient’s Bill of Rights, update and implementation 2016 Højgaard, Liselotte Löwenberg, Bob Selby, Peter Lawler, Mark Banks, Ian Law, Kate Albreht, Tit Armand, Jean-Pierre Barbacid, Mariano Barzach, Michèle Bergh, Jonas Cameron, David Conte, Pierfranco de Braud, Filippo de Gramont, Aimery De Lorenzo, Francesco Diehl, Volker Diler, Sarper Erdem, Sema Geissler, Jan Gore-Booth, Jola Henning, Geoffrey Horgan, Denis Jassem, Jacek Johnson, Peter Kaasa, Stein Kapitein, Peter Karjalainen, Sakari Kelly, Joan Kienesberger, Anita La Vecchia, Carlo Lacombe, Denis Lindahl, Tomas Luzzatto, Lucio Malby, Rebecca Mastris, Ken Meunier, Françoise Murphy, Martin Naredi, Peter Nurse, Paul Oliver, Kathy Pearce, Jonathan Pelouchov, Jana Piccart, Martine Pinedo, Bob Spurrier-Bernard, Gilly Sullivan, Richard Tabernero, Josep Van de Velde, Cornelis van Herk, Bert Vedsted, Peter Waldmann, Anita Weller, David Wilking, Nils Wilson, Roger Yared, Wendy Zielinski, Christoph zur Hausen, Harald Le Chevalier, Thierry Johnston, Patrick ESMO Open Review In this implementation phase of the European Cancer Patient’s Bill of Rights (BoR), we confirm the following three patient-centred principles that underpin this initiative: 1. The right of every European citizen to receive the most accurate information and to be proactively involved in his/her care. 2. The right of every European citizen to optimal and timely access to a diagnosis and to appropriate specialised care, underpinned by research and innovation. 3. The right of every European citizen to receive care in health systems that ensure the best possible cancer prevention, the earliest possible diagnosis of their cancer, improved outcomes, patient rehabilitation, best quality of life and affordable health care. The key aspects of working towards implementing the BoR are: Agree our high-level goal. The vision of 70% long-term survival for patients with cancer in 2035, promoting cancer prevention and cancer control and the associated progress in ensuring good patient experience and quality of life. Establish the major mechanisms to underpin its delivery. (1) The systematic and rigorous sharing of best practice between and across European cancer healthcare systems and (2) the active promotion of Research and Innovation focused on improving outcomes; (3) Improving access to new and established cancer care by sharing best practice in the development, approval, procurement and reimbursement of cancer diagnostic tests and treatments. Work with other organisations to bring into being a Europe based centre that will (1) systematically identify, evaluate and validate and disseminate best practice in cancer management for the different countries and regions and (2) promote Research and Innovation and its translation to maximise its impact to improve outcomes. ESMO Open 2017-01-06 /pmc/articles/PMC5548978/ /pubmed/28848664 http://dx.doi.org/10.1136/esmoopen-2016-000127 Text en Published by the BMJ Publishing Group Limited. For permission to use (where not already granted under a licence) please go to http://www.bmj.com/company/products-services/rights-and-licensing/ This is an Open Access article distributed in accordance with the Creative Commons Attribution Non Commercial (CC BY-NC 4.0) license, which permits others to distribute, remix, adapt, build upon this work non-commercially, and license their derivative works on different terms, provided the original work is properly cited and the use is non-commercial. See: http://creativecommons.org/licenses/by-nc/4.0/ |
spellingShingle | Review Højgaard, Liselotte Löwenberg, Bob Selby, Peter Lawler, Mark Banks, Ian Law, Kate Albreht, Tit Armand, Jean-Pierre Barbacid, Mariano Barzach, Michèle Bergh, Jonas Cameron, David Conte, Pierfranco de Braud, Filippo de Gramont, Aimery De Lorenzo, Francesco Diehl, Volker Diler, Sarper Erdem, Sema Geissler, Jan Gore-Booth, Jola Henning, Geoffrey Horgan, Denis Jassem, Jacek Johnson, Peter Kaasa, Stein Kapitein, Peter Karjalainen, Sakari Kelly, Joan Kienesberger, Anita La Vecchia, Carlo Lacombe, Denis Lindahl, Tomas Luzzatto, Lucio Malby, Rebecca Mastris, Ken Meunier, Françoise Murphy, Martin Naredi, Peter Nurse, Paul Oliver, Kathy Pearce, Jonathan Pelouchov, Jana Piccart, Martine Pinedo, Bob Spurrier-Bernard, Gilly Sullivan, Richard Tabernero, Josep Van de Velde, Cornelis van Herk, Bert Vedsted, Peter Waldmann, Anita Weller, David Wilking, Nils Wilson, Roger Yared, Wendy Zielinski, Christoph zur Hausen, Harald Le Chevalier, Thierry Johnston, Patrick The European Cancer Patient’s Bill of Rights, update and implementation 2016 |
title | The European Cancer Patient’s Bill of Rights, update and implementation 2016 |
title_full | The European Cancer Patient’s Bill of Rights, update and implementation 2016 |
title_fullStr | The European Cancer Patient’s Bill of Rights, update and implementation 2016 |
title_full_unstemmed | The European Cancer Patient’s Bill of Rights, update and implementation 2016 |
title_short | The European Cancer Patient’s Bill of Rights, update and implementation 2016 |
title_sort | european cancer patient’s bill of rights, update and implementation 2016 |
topic | Review |
url | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5548978/ https://www.ncbi.nlm.nih.gov/pubmed/28848664 http://dx.doi.org/10.1136/esmoopen-2016-000127 |
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