Cargando…

Healthcare professionals’ and patients’ perspectives on consent to clinical genetic testing: moving towards a more relational approach

BACKGROUND: This paper proposes a refocusing of consent for clinical genetic testing, moving away from an emphasis on autonomy and information provision, towards an emphasis on the virtues of healthcare professionals seeking consent, and the relationships they construct with their patients. METHODS:...

Descripción completa

Detalles Bibliográficos
Autores principales:	Samuel, Gabrielle Natalie, Dheensa, Sandi, Farsides, Bobbie, Fenwick, Angela, Lucassen, Anneke
Formato:	Online Artículo Texto
Lenguaje:	English
Publicado:	BioMed Central 2017
Materias:	Research Article
Acceso en línea:	https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5549302/ https://www.ncbi.nlm.nih.gov/pubmed/28789658 http://dx.doi.org/10.1186/s12910-017-0207-8

Ejemplares similares

Towards a national genomics medicine service: the challenges facing clinical-research hybrid practices and the case of the 100 000 genomes project
por: Dheensa, Sandi, et al.
Publicado: (2018)

Approaching confidentiality at a familial level in genomic medicine: a focus group study with healthcare professionals
por: Dheensa, Sandi, et al.
Publicado: (2017)

Limitations and Pitfalls of Using Family Letters to Communicate Genetic Risk: a Qualitative Study with Patients and Healthcare Professionals
por: Dheensa, Sandi, et al.
Publicado: (2017)

‘Is this knowledge mine and nobody else's? I don't feel that.’ Patient views about consent, confidentiality and information-sharing in genetic medicine
por: Dheensa, Sandi, et al.
Publicado: (2016)

What results to disclose, when, and who decides? Healthcare professionals' views on prenatal chromosomal microarray analysis
por: Shkedi‐Rafid, Shiri, et al.
Publicado: (2016)

How do clinical genetics consent forms address the familial approach to confidentiality and incidental findings? A mixed-methods study
por: Dheensa, Sandi, et al.
Publicado: (2017)

Health-care professionals' responsibility to patients' relatives in genetic medicine: a systematic review and synthesis of empirical research
por: Dheensa, Sandi, et al.
Publicado: (2016)

Predictive Genetic Testing of Children for Adult-Onset Conditions: Negotiating Requests with Parents
por: Fenwick, Angela, et al.
Publicado: (2016)

Genetic testing of children for adult-onset conditions: opinions of the British adult population and implications for clinical practice
por: Shkedi-Rafid, Shiri, et al.
Publicado: (2015)

Recontacting in clinical practice: an investigation of the views of healthcare professionals and clinical scientists in the United Kingdom
por: Carrieri, Daniele, et al.
Publicado: (2017)

Consenting futures: professional views on social, clinical and ethical aspects of information feedback to embryo donors in human embryonic stem cell research
por: Ehrich, Kathryn, et al.
Publicado: (2010)

Public trust and ‘ethics review’ as a commodity: the case of Genomics England Limited and the UK’s 100,000 genomes project
por: Samuel, Gabrielle Natalie, et al.
Publicado: (2017)

Genomics England’s implementation of its public engagement strategy: Blurred boundaries between engagement for the United Kingdom’s 100,000 Genomes project and the need for public support
por: Samuel, Gabrielle Natalie, et al.
Publicado: (2017)

The UK’s 100,000 Genomes Project: manifesting policymakers’ expectations
por: Samuel, Gabrielle Natalie, et al.
Publicado: (2017)

A REDCap-based model for electronic consent (eConsent): Moving toward a more personalized consent
por: Lawrence, Colleen E., et al.
Publicado: (2020)

Consent and Autonomy in the Genomics Era
por: Horton, Rachel, et al.
Publicado: (2019)

Tailoring Consent to Context: Designing an Appropriate Consent Process for a Biomedical Study in a Low Income Setting
por: Tekola, Fasil, et al.
Publicado: (2009)

DONATION OF ‘SPARE’ FRESH OR FROZEN EMBRYOS TO RESEARCH: WHO DECIDES THAT AN EMBRYO IS ‘SPARE’ AND HOW CAN WE ENHANCE THE QUALITY AND PROTECT THE VALIDITY OF CONSENT?
por: Scott, Rosamund, et al.
Publicado: (2012)

Rapid Ethical Assessment on Informed Consent Content and Procedure in Hintalo-Wajirat, Northern Ethiopia: A Qualitative Study
por: Abay, Serebe, et al.
Publicado: (2016)

A mixed-methods study on perceptions towards use of Rapid Ethical Assessment to improve informed consent processes for health research in a low-income setting
por: Addissie, Adamu, et al.
Publicado: (2014)

Cluster randomized trial assessing the effects of rapid ethical assessment on informed consent comprehension in a low-resource setting
por: Addissie, Adamu, et al.
Publicado: (2016)

Sharing information about domestic violence and abuse in healthcare: an analysis of English guidance and recommendations for good practice
por: Dheensa, Sandi, et al.
Publicado: (2022)

Impact of social stigma on the process of obtaining informed consent for genetic research on podoconiosis: a qualitative study
por: Tekola, Fasil, et al.
Publicado: (2009)

Moving Toward Age-Diverse Universities: Perspectives of Admission and Career Service Professionals
por: Morrow-Howell, Nancy, et al.
Publicado: (2020)

Using biomarkers in acute medicine to prevent hearing loss: should this require specific consent?
por: Coulson-Smith, Peta, et al.
Publicado: (2020)

Recontact in clinical practice: a survey of clinical genetics services in the United Kingdom
por: Carrieri, Daniele, et al.
Publicado: (2016)

Recontacting in clinical practice: the views and expectations of patients in the United Kingdom
por: Carrieri, Daniele, et al.
Publicado: (2017)

Healthcare Professionals’ Own Experiences of Domestic Violence and Abuse: A Meta-Analysis of Prevalence and Systematic Review of Risk Markers and Consequences
por: Dheensa, Sandi, et al.
Publicado: (2022)

In Defense of Best Interests: When Parents and Clinicians Disagree
por: Coulson-Smith, Peta, et al.
Publicado: (2018)

Writing the worlds of genomic medicine: experiences of using participatory-writing to understand life with rare conditions
por: Gorman, Richard, et al.
Publicado: (2022)

Healthcare Professionals’ Views and Perspectives towards Aging
por: Palsgaard, Peggy, et al.
Publicado: (2022)

Is it acceptable to contact an anonymous egg donor to facilitate diagnostic genetic testing for the donor-conceived child?
por: Horton, Rachel, et al.
Publicado: (2019)

Healthcare Professional Standards in Pandemic Conditions: The Duty to Obtain Consent to Treatment
por: Devaney, Sarah, et al.
Publicado: (2020)

The embryo as moral work object: PGD/IVF staff views and experiences
por: Ehrich, Kathryn, et al.
Publicado: (2008)

Fresh or frozen? Classifying ‘spare’ embryos for donation to human embryonic stem cell research
por: Ehrich, Kathryn, et al.
Publicado: (2010)

Patients’ and Healthcare Professionals’ Perspectives on Preoperative Informed Consent Procedure Obstacles and Potential Solutions, 2021: A Qualitative Study
por: Negash, Tadese, et al.
Publicado: (2023)

Changing Directions and Expanding Horizons: Moving towards More Inclusive Healthcare for Parents of Children with Developmental Disabilities
por: Novak-Pavlic, Monika, et al.
Publicado: (2023)

Perspectives of Buruli Ulcer Patients toward Informed Consent – An Insight from Nigeria
por: Meka, Ijeoma Angela, et al.
Publicado: (2021)

Moving toward More Frequent On-Line Only Journal
por: Choe, Yeon Hyeon
Publicado: (2019)

Children’s informed signified and voluntary consent to heart surgery: Professionals’ practical perspectives
por: Alderson, Priscilla, et al.
Publicado: (2022)

Cannot write session to /tmp/vufind_sessions/sess_h3jlmu7cua3kgm7fhehhc6pafa