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“Hope for the best, prepare for the worst”: A qualitative interview study on parents’ needs and fears in pediatric advance care planning
BACKGROUND: Pediatric advance care planning is advocated by healthcare providers because it may increase the chance that patient and/or parent wishes are respected and thus improve end-of-life care. However, since end-of-life decisions for children are particularly difficult and charged with emotion...
Autores principales: | Lotz, Julia Desiree, Daxer, Marion, Jox, Ralf J, Borasio, Gian Domenico, Führer, Monika |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
SAGE Publications
2016
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5557107/ https://www.ncbi.nlm.nih.gov/pubmed/27881828 http://dx.doi.org/10.1177/0269216316679913 |
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