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Culturally Competent Informed-Consent Process to Evaluate a Social Policy for Older Persons With Low Literacy: The Mexican Case

The informed-consent process seeks to provide complete information to participants about a research project and to protect personal information they may disclose. In this article, we present an informed-consent process that we piloted and improved to obtain consent from older adults in Yucatan, Mexi...

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Autores principales: Aguila, Emma, Weidmer, Beverly A., Illingworth, Alfonso Rivera, Martinez, Homero
Formato: Online Artículo Texto
Lenguaje:English
Publicado: 2016
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5562373/
https://www.ncbi.nlm.nih.gov/pubmed/28824826
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author Aguila, Emma
Weidmer, Beverly A.
Illingworth, Alfonso Rivera
Martinez, Homero
author_facet Aguila, Emma
Weidmer, Beverly A.
Illingworth, Alfonso Rivera
Martinez, Homero
author_sort Aguila, Emma
collection PubMed
description The informed-consent process seeks to provide complete information to participants about a research project and to protect personal information they may disclose. In this article, we present an informed-consent process that we piloted and improved to obtain consent from older adults in Yucatan, Mexico. Respondents had limited fluency in Spanish, spoke the local Mayan language, and had some physical limitations due to their age. We describe how we adapted the informed-consent process to comply with U.S. and Mexican regulations, while simplifying the forms and providing them in Spanish and Mayan. We present the challenges and lessons learned when dealing with low-literacy older populations, some with diminished autonomy, in a bilingual context and a binational approach to the legal framework.
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spelling pubmed-55623732017-08-18 Culturally Competent Informed-Consent Process to Evaluate a Social Policy for Older Persons With Low Literacy: The Mexican Case Aguila, Emma Weidmer, Beverly A. Illingworth, Alfonso Rivera Martinez, Homero Sage Open Article The informed-consent process seeks to provide complete information to participants about a research project and to protect personal information they may disclose. In this article, we present an informed-consent process that we piloted and improved to obtain consent from older adults in Yucatan, Mexico. Respondents had limited fluency in Spanish, spoke the local Mayan language, and had some physical limitations due to their age. We describe how we adapted the informed-consent process to comply with U.S. and Mexican regulations, while simplifying the forms and providing them in Spanish and Mayan. We present the challenges and lessons learned when dealing with low-literacy older populations, some with diminished autonomy, in a bilingual context and a binational approach to the legal framework. 2016-08-22 2016 /pmc/articles/PMC5562373/ /pubmed/28824826 Text en Creative Commons CC-BY: This article is distributed under the terms of the Creative Commons Attribution 3.0 License (http://www.creativecommons.org/licenses/by/3.0/) which permits any use, reproduction and distribution of the work without further permission provided the original work is attributed as specified on the SAGE and Open Access pages (https://us.sagepub.com/en-us/nam/open-access-at-sage (http://https://us.sagepub.com/en-us/nam/open-access-at-sage) ).
spellingShingle Article
Aguila, Emma
Weidmer, Beverly A.
Illingworth, Alfonso Rivera
Martinez, Homero
Culturally Competent Informed-Consent Process to Evaluate a Social Policy for Older Persons With Low Literacy: The Mexican Case
title Culturally Competent Informed-Consent Process to Evaluate a Social Policy for Older Persons With Low Literacy: The Mexican Case
title_full Culturally Competent Informed-Consent Process to Evaluate a Social Policy for Older Persons With Low Literacy: The Mexican Case
title_fullStr Culturally Competent Informed-Consent Process to Evaluate a Social Policy for Older Persons With Low Literacy: The Mexican Case
title_full_unstemmed Culturally Competent Informed-Consent Process to Evaluate a Social Policy for Older Persons With Low Literacy: The Mexican Case
title_short Culturally Competent Informed-Consent Process to Evaluate a Social Policy for Older Persons With Low Literacy: The Mexican Case
title_sort culturally competent informed-consent process to evaluate a social policy for older persons with low literacy: the mexican case
topic Article
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5562373/
https://www.ncbi.nlm.nih.gov/pubmed/28824826
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