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Social/economic costs and health-related quality of life in patients with spinal muscular atrophy (SMA) in Spain

BACKGROUND: The aim of this study was to determine the economic burden and health-related quality of life (HRQOL) of patients with Spinal Muscular Atrophy (SMA) and their caregivers in Spain. METHODS: This was a cross-sectional and retrospective study of patients diagnosed with SMA in Spain. We adop...

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Detalles Bibliográficos
Autores principales: López-Bastida, Julio, Peña-Longobardo, Luz María, Aranda-Reneo, Isaac, Tizzano, Eduardo, Sefton, Mark, Oliva-Moreno, Juan
Formato: Online Artículo Texto
Lenguaje:English
Publicado: BioMed Central 2017
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5563035/
https://www.ncbi.nlm.nih.gov/pubmed/28821278
http://dx.doi.org/10.1186/s13023-017-0695-0