Cargando…
Clinical genomics, big data, and electronic medical records: reconciling patient rights with research when privacy and science collide
Widespread use of medical records for research, without consent, attracts little scrutiny compared to biospecimen research, where concerns about genomic privacy prompted recent federal proposals to mandate consent. This paper explores an important consequence of the proliferation of electronic healt...
Autores principales: | Kulynych, Jennifer, Greely, Henry T. |
---|---|
Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
Oxford University Press
2017
|
Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5570692/ https://www.ncbi.nlm.nih.gov/pubmed/28852559 http://dx.doi.org/10.1093/jlb/lsw061 |
Ejemplares similares
-
Reconciling the ideals of open science with data privacy in the context of health research in Nigeria: A legal analysis
por: Adaji, Aishatu Eleojo
Publicado: (2023) -
Privacy, security, and the public health researcher in the era of
electronic health record research
por: Goldstein, Neal D., et al.
Publicado: (2016) -
Reconciling through Science
Publicado: (1997) -
Privacy and Big Data
por: Craig, Terence, et al.
Publicado: (2011) -
Big Science and the Large Hadron Collider
por: Giudice, Gian Francesco
Publicado: (2011)