Cargando…
Using Patient-Reported Outcome Measures for Quality Improvement in Clinical Genetics: an Exploratory Study
International advocacy of patient-centred healthcare delivery has led to emphasis on the (re)design and evaluation of healthcare processes and outcomes from a patient perspective. Patient-reported outcome measures (PROMs) have significant potential to inform such attempts. However there is limited u...
Autores principales: | , , , , , , |
---|---|
Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
Springer US
2017
|
Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5582073/ https://www.ncbi.nlm.nih.gov/pubmed/28281044 http://dx.doi.org/10.1007/s10897-017-0079-6 |
_version_ | 1783261123118628864 |
---|---|
author | Costal Tirado, A. McDermott, A. M. Thomas, C. Ferrick, D. Harris, J. Edwards, A. McAllister, Marion |
author_facet | Costal Tirado, A. McDermott, A. M. Thomas, C. Ferrick, D. Harris, J. Edwards, A. McAllister, Marion |
author_sort | Costal Tirado, A. |
collection | PubMed |
description | International advocacy of patient-centred healthcare delivery has led to emphasis on the (re)design and evaluation of healthcare processes and outcomes from a patient perspective. Patient-reported outcome measures (PROMs) have significant potential to inform such attempts. However there is limited understanding of the processes by which this can be achieved. This exploratory study followed attempts to utilise two different PROMs measures to support service quality improvement in clinical genetics. PROMs used were the Genetic Counseling Outcome Scale (GCOS-24), a well-validated clinical genetics-specific PROM and Euroqol (EQ-5D), a generic PROM favoured by the UK National Institute for Health and Excellence (NICE). Both of these PROMs enable pre/post intervention comparison. A service audit tool was also used, premised on a patient-reported experience measure. In addition, the study draws on interviews with clinical staff to identify challenges associated with the use of PROMs (response rate, data collection, analysis). Benefits are also explored and include the provision of insight into patients’ needs; complementing clinical judgement; identification of needs being met, evidencing the benefit of services provided; prompting consideration of areas requiring attention; and encouraging professional development. ELECTRONIC SUPPLEMENTARY MATERIAL: The online version of this article (doi:10.1007/s10897-017-0079-6) contains supplementary material, which is available to authorized users. |
format | Online Article Text |
id | pubmed-5582073 |
institution | National Center for Biotechnology Information |
language | English |
publishDate | 2017 |
publisher | Springer US |
record_format | MEDLINE/PubMed |
spelling | pubmed-55820732017-09-19 Using Patient-Reported Outcome Measures for Quality Improvement in Clinical Genetics: an Exploratory Study Costal Tirado, A. McDermott, A. M. Thomas, C. Ferrick, D. Harris, J. Edwards, A. McAllister, Marion J Genet Couns Original Research International advocacy of patient-centred healthcare delivery has led to emphasis on the (re)design and evaluation of healthcare processes and outcomes from a patient perspective. Patient-reported outcome measures (PROMs) have significant potential to inform such attempts. However there is limited understanding of the processes by which this can be achieved. This exploratory study followed attempts to utilise two different PROMs measures to support service quality improvement in clinical genetics. PROMs used were the Genetic Counseling Outcome Scale (GCOS-24), a well-validated clinical genetics-specific PROM and Euroqol (EQ-5D), a generic PROM favoured by the UK National Institute for Health and Excellence (NICE). Both of these PROMs enable pre/post intervention comparison. A service audit tool was also used, premised on a patient-reported experience measure. In addition, the study draws on interviews with clinical staff to identify challenges associated with the use of PROMs (response rate, data collection, analysis). Benefits are also explored and include the provision of insight into patients’ needs; complementing clinical judgement; identification of needs being met, evidencing the benefit of services provided; prompting consideration of areas requiring attention; and encouraging professional development. ELECTRONIC SUPPLEMENTARY MATERIAL: The online version of this article (doi:10.1007/s10897-017-0079-6) contains supplementary material, which is available to authorized users. Springer US 2017-03-09 2017 /pmc/articles/PMC5582073/ /pubmed/28281044 http://dx.doi.org/10.1007/s10897-017-0079-6 Text en © The Author(s) 2017 Open Access This article is distributed under the terms of the Creative Commons Attribution 4.0 International License (http://creativecommons.org/licenses/by/4.0/), which permits unrestricted use, distribution, and reproduction in any medium, provided you give appropriate credit to the original author(s) and the source, provide a link to the Creative Commons license, and indicate if changes were made. |
spellingShingle | Original Research Costal Tirado, A. McDermott, A. M. Thomas, C. Ferrick, D. Harris, J. Edwards, A. McAllister, Marion Using Patient-Reported Outcome Measures for Quality Improvement in Clinical Genetics: an Exploratory Study |
title | Using Patient-Reported Outcome Measures for Quality Improvement in Clinical Genetics: an Exploratory Study |
title_full | Using Patient-Reported Outcome Measures for Quality Improvement in Clinical Genetics: an Exploratory Study |
title_fullStr | Using Patient-Reported Outcome Measures for Quality Improvement in Clinical Genetics: an Exploratory Study |
title_full_unstemmed | Using Patient-Reported Outcome Measures for Quality Improvement in Clinical Genetics: an Exploratory Study |
title_short | Using Patient-Reported Outcome Measures for Quality Improvement in Clinical Genetics: an Exploratory Study |
title_sort | using patient-reported outcome measures for quality improvement in clinical genetics: an exploratory study |
topic | Original Research |
url | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5582073/ https://www.ncbi.nlm.nih.gov/pubmed/28281044 http://dx.doi.org/10.1007/s10897-017-0079-6 |
work_keys_str_mv | AT costaltiradoa usingpatientreportedoutcomemeasuresforqualityimprovementinclinicalgeneticsanexploratorystudy AT mcdermottam usingpatientreportedoutcomemeasuresforqualityimprovementinclinicalgeneticsanexploratorystudy AT thomasc usingpatientreportedoutcomemeasuresforqualityimprovementinclinicalgeneticsanexploratorystudy AT ferrickd usingpatientreportedoutcomemeasuresforqualityimprovementinclinicalgeneticsanexploratorystudy AT harrisj usingpatientreportedoutcomemeasuresforqualityimprovementinclinicalgeneticsanexploratorystudy AT edwardsa usingpatientreportedoutcomemeasuresforqualityimprovementinclinicalgeneticsanexploratorystudy AT mcallistermarion usingpatientreportedoutcomemeasuresforqualityimprovementinclinicalgeneticsanexploratorystudy |