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A Survey of Patients’ Perspectives on Outpatient HIV Care in the Netherlands

INTRODUCTION: Responding to patients’ needs and preferences is important in the delivery of outpatient care. Recent and systematically collected data reflecting human immunodeficiency virus (HIV)-infected patients’ opinions on how their outpatient care should be delivered are lacking. Our aim was to...

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Autores principales: Engelhard, Esther A. N., Smit, Colette, Kroon, Frank P., Nieuwkerk, Pythia T., Reiss, Peter, Brinkman, Kees, Geerlings, Suzanne E.
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Springer Healthcare 2017
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5595778/
https://www.ncbi.nlm.nih.gov/pubmed/28677021
http://dx.doi.org/10.1007/s40121-017-0164-z
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author Engelhard, Esther A. N.
Smit, Colette
Kroon, Frank P.
Nieuwkerk, Pythia T.
Reiss, Peter
Brinkman, Kees
Geerlings, Suzanne E.
author_facet Engelhard, Esther A. N.
Smit, Colette
Kroon, Frank P.
Nieuwkerk, Pythia T.
Reiss, Peter
Brinkman, Kees
Geerlings, Suzanne E.
author_sort Engelhard, Esther A. N.
collection PubMed
description INTRODUCTION: Responding to patients’ needs and preferences is important in the delivery of outpatient care. Recent and systematically collected data reflecting human immunodeficiency virus (HIV)-infected patients’ opinions on how their outpatient care should be delivered are lacking. Our aim was to identify aspects of care that people with HIV in outpatient care in The Netherlands consider important and to evaluate the extent to which the received care meets their expectations. METHODS: We measured patient preferences and experiences in a nationwide sample of HIV-infected patients using a modified, previously validated questionnaire (QUOTE-HIV). RESULTS: The aspects of care that were considered most important were specific expertise of the care provider in HIV medicine, the care provider taking the patient seriously and receiving adequate information about treatment options. In addition, confidentiality of HIV status at the outpatient clinic was a major concern. Patient experiences were positive, with the majority of the respondents indicating that they always or usually received care in accordance with their preferences. CONCLUSION: HIV-infected patients greatly value having care providers with HIV-specific expertise. Safeguarding the privacy of HIV status and the provision of information about treatment options are matters that deserve continuous attention in the delivery of outpatient HIV care. ELECTRONIC SUPPLEMENTARY MATERIAL: The online version of this article (doi:10.1007/s40121-017-0164-z) contains supplementary material, which is available to authorized users.
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spelling pubmed-55957782017-10-02 A Survey of Patients’ Perspectives on Outpatient HIV Care in the Netherlands Engelhard, Esther A. N. Smit, Colette Kroon, Frank P. Nieuwkerk, Pythia T. Reiss, Peter Brinkman, Kees Geerlings, Suzanne E. Infect Dis Ther Original Research INTRODUCTION: Responding to patients’ needs and preferences is important in the delivery of outpatient care. Recent and systematically collected data reflecting human immunodeficiency virus (HIV)-infected patients’ opinions on how their outpatient care should be delivered are lacking. Our aim was to identify aspects of care that people with HIV in outpatient care in The Netherlands consider important and to evaluate the extent to which the received care meets their expectations. METHODS: We measured patient preferences and experiences in a nationwide sample of HIV-infected patients using a modified, previously validated questionnaire (QUOTE-HIV). RESULTS: The aspects of care that were considered most important were specific expertise of the care provider in HIV medicine, the care provider taking the patient seriously and receiving adequate information about treatment options. In addition, confidentiality of HIV status at the outpatient clinic was a major concern. Patient experiences were positive, with the majority of the respondents indicating that they always or usually received care in accordance with their preferences. CONCLUSION: HIV-infected patients greatly value having care providers with HIV-specific expertise. Safeguarding the privacy of HIV status and the provision of information about treatment options are matters that deserve continuous attention in the delivery of outpatient HIV care. ELECTRONIC SUPPLEMENTARY MATERIAL: The online version of this article (doi:10.1007/s40121-017-0164-z) contains supplementary material, which is available to authorized users. Springer Healthcare 2017-07-04 2017-09 /pmc/articles/PMC5595778/ /pubmed/28677021 http://dx.doi.org/10.1007/s40121-017-0164-z Text en © The Author(s) 2017 https://creativecommons.org/licenses/by-nc/4.0/This article is distributed under the terms of the Creative Commons Attribution-NonCommercial 4.0 International License (http://creativecommons.org/licenses/by-nc/4.0/ (https://creativecommons.org/licenses/by-nc/4.0/) ), which permits any noncommercial use, distribution, and reproduction in any medium, provided you give appropriate credit to the original author(s) and the source, provide a link to the Creative Commons license, and indicate if changes were made.
spellingShingle Original Research
Engelhard, Esther A. N.
Smit, Colette
Kroon, Frank P.
Nieuwkerk, Pythia T.
Reiss, Peter
Brinkman, Kees
Geerlings, Suzanne E.
A Survey of Patients’ Perspectives on Outpatient HIV Care in the Netherlands
title A Survey of Patients’ Perspectives on Outpatient HIV Care in the Netherlands
title_full A Survey of Patients’ Perspectives on Outpatient HIV Care in the Netherlands
title_fullStr A Survey of Patients’ Perspectives on Outpatient HIV Care in the Netherlands
title_full_unstemmed A Survey of Patients’ Perspectives on Outpatient HIV Care in the Netherlands
title_short A Survey of Patients’ Perspectives on Outpatient HIV Care in the Netherlands
title_sort survey of patients’ perspectives on outpatient hiv care in the netherlands
topic Original Research
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5595778/
https://www.ncbi.nlm.nih.gov/pubmed/28677021
http://dx.doi.org/10.1007/s40121-017-0164-z
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