From tokenism to meaningful engagement: best practices in patient involvement in an EU project

This commentary talks about patient involvement in one of the biggest EU projects to date—U-BIOPRED. It describes how people and carers of people with asthma have been able to develop and drive their input and have their voice heard among the >200 healthcare professional project members. Five key...

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Autores principales: Supple, David, Roberts, Amanda, Hudson, Val, Masefield, Sarah, Fitch, Neil, Rahmen, Malayka, Flood, Breda, de Boer, Willem, Powell, Pippa, Wagers, Scott
Formato: Online Artículo Texto
Lenguaje:English
Publicado: BioMed Central 2015
Materias:
Commentary
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5598090/
https://www.ncbi.nlm.nih.gov/pubmed/29062494
http://dx.doi.org/10.1186/s40900-015-0004-9
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author Supple, David
Roberts, Amanda
Hudson, Val
Masefield, Sarah
Fitch, Neil
Rahmen, Malayka
Flood, Breda
de Boer, Willem
Powell, Pippa
Wagers, Scott
author_facet Supple, David
Roberts, Amanda
Hudson, Val
Masefield, Sarah
Fitch, Neil
Rahmen, Malayka
Flood, Breda
de Boer, Willem
Powell, Pippa
Wagers, Scott
author_sort Supple, David
collection PubMed
description This commentary talks about patient involvement in one of the biggest EU projects to date—U-BIOPRED. It describes how people and carers of people with asthma have been able to develop and drive their input and have their voice heard among the >200 healthcare professional project members. Five key principles for the success of the patient involvement group are presented: involve early, involve deeply, have patients feedback on project progress, include patients in dissemination and help patients convey their own story. This group has been used as an example for other EU-funded projects, and the patient involvement group will be maintained after the end of the project to ensure that their experience and knowledge can help develop best practice in the future.
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spelling pubmed-55980902017-10-23 From tokenism to meaningful engagement: best practices in patient involvement in an EU project Supple, David Roberts, Amanda Hudson, Val Masefield, Sarah Fitch, Neil Rahmen, Malayka Flood, Breda de Boer, Willem Powell, Pippa Wagers, Scott Res Involv Engagem Commentary This commentary talks about patient involvement in one of the biggest EU projects to date—U-BIOPRED. It describes how people and carers of people with asthma have been able to develop and drive their input and have their voice heard among the >200 healthcare professional project members. Five key principles for the success of the patient involvement group are presented: involve early, involve deeply, have patients feedback on project progress, include patients in dissemination and help patients convey their own story. This group has been used as an example for other EU-funded projects, and the patient involvement group will be maintained after the end of the project to ensure that their experience and knowledge can help develop best practice in the future. BioMed Central 2015-06-25 /pmc/articles/PMC5598090/ /pubmed/29062494 http://dx.doi.org/10.1186/s40900-015-0004-9 Text en © Supple et al. 2015 This article is published under license to BioMed Central Ltd. This is an Open Access article distributed under the terms of the Creative Commons Attribution License (http://creativecommons.org/licenses/by/4.0), which permits unrestricted use, distribution, and reproduction in any medium, provided the original work is properly credited. The Creative Commons Public Domain Dedication waiver (http://creativecommons.org/publicdomain/zero/1.0/) applies to the data made available in this article, unless otherwise stated.
spellingShingle Commentary
Supple, David
Roberts, Amanda
Hudson, Val
Masefield, Sarah
Fitch, Neil
Rahmen, Malayka
Flood, Breda
de Boer, Willem
Powell, Pippa
Wagers, Scott
From tokenism to meaningful engagement: best practices in patient involvement in an EU project
title From tokenism to meaningful engagement: best practices in patient involvement in an EU project
title_full From tokenism to meaningful engagement: best practices in patient involvement in an EU project
title_fullStr From tokenism to meaningful engagement: best practices in patient involvement in an EU project
title_full_unstemmed From tokenism to meaningful engagement: best practices in patient involvement in an EU project
title_short From tokenism to meaningful engagement: best practices in patient involvement in an EU project
title_sort from tokenism to meaningful engagement: best practices in patient involvement in an eu project
topic Commentary
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5598090/
https://www.ncbi.nlm.nih.gov/pubmed/29062494
http://dx.doi.org/10.1186/s40900-015-0004-9
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