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The health and life path of rare disease patients: results of the 2015 French barometer
PURPOSE: A barometer has been set up to provide better knowledge about the daily situation of French rare disease (RD) patients, their families and relatives, in order to contribute to the elaboration of improvement measures. This report focuses on the care and life path of RD patients. PATIENTS AND...
| Autores principales: | , , |
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| Formato: | Online Artículo Texto |
| Lenguaje: | English |
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Dove Medical Press
2017
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| Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5602466/ https://www.ncbi.nlm.nih.gov/pubmed/28979171 http://dx.doi.org/10.2147/PROM.S131033 |