Stroke survivors’ views and experiences on impact of visual impairment

OBJECTIVES: We sought to determine stroke survivors’ views on impact of stroke‐related visual impairment to quality of life. MATERIALS AND METHODS: Stroke survivors with visual impairment, more than 1 year post stroke onset, were recruited. Semistructured biographical narrative interviews were audio‐recorded and transcribed verbatim. A thematic approach to analysis of the qualitative data was adopted. Transcripts were systematically coded using NVivo10 software. RESULTS: Thirty‐five stroke survivors were interviewed across the UK: 16 females, 19 males; aged 20–75 years at stroke onset. Five qualitative themes emerged: “Formal care,” “Symptoms and self,” “Adaptations,” “Daily life,” and “Information.” Where visual problems existed, they were often not immediately recognized as part of the stroke syndrome and attributed to other causes such as migraine. Many participants did not receive early vision assessment or treatment for their visual problems. Visual problems included visual field loss, double vision, and perceptual problems. Impact of visual problems included loss in confidence, being a burden to others, increased collisions/accidents, and fear of falling. They made many self‐identified adaptations to compensate for visual problems: magnifiers, large print, increased lighting, use of white sticks. There was a consistent lack of support and provision of information about visual problems. CONCLUSIONS: Poststroke visual impairment causes considerable impact to daily life which could be substantially improved by simple measures including early formal visual assessment, management and advice on adaptive strategies and self‐management options. Improved education about poststroke visual impairment for the public and clinicians could aid earlier diagnosis of visual impairments.