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Patient organization involvement and the challenge of securing access to treatments for rare diseases: report of a policy engagement workshop
PLAIN ENGLISH SUMMARY: Patients with rare diseases often help to develop new treatments for their conditions. But once developed, those treatments are sometimes priced too high for many patients to access them. We became aware that this is a problem in the course of a social science research project...
| Autores principales: | , |
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| Formato: | Online Artículo Texto |
| Lenguaje: | English |
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BioMed Central
2017
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| Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5611560/ https://www.ncbi.nlm.nih.gov/pubmed/29062539 http://dx.doi.org/10.1186/s40900-017-0065-z |