The New Zealand Neuromuscular Disease Patient Registry; Five Years and a Thousand Patients

The New Zealand Neuromuscular Disease Patient Registry has been recruiting for five years. Its primary aim is to enable people with neuromuscular disease to participate in research including clinical trials. It has contributed data to large anonymised cohort studies and many feasibility studies, and...

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Detalles Bibliográficos
Autores principales: Rodrigues, Miriam J., O’Grady, Gina L., Hammond-Tooke, Graeme, Kidd, Alexa, Love, Donald O., Baker, Ronelle K., Roxburgh, Richard H.
Formato: Online Artículo Texto
Lenguaje:English
Publicado: IOS Press 2017
Materias:
Research Report
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5611797/
https://www.ncbi.nlm.nih.gov/pubmed/28800337
http://dx.doi.org/10.3233/JND-170240

Internet

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5611797/
https://www.ncbi.nlm.nih.gov/pubmed/28800337
http://dx.doi.org/10.3233/JND-170240

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