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The New Zealand Neuromuscular Disease Patient Registry; Five Years and a Thousand Patients
The New Zealand Neuromuscular Disease Patient Registry has been recruiting for five years. Its primary aim is to enable people with neuromuscular disease to participate in research including clinical trials. It has contributed data to large anonymised cohort studies and many feasibility studies, and...
| Autores principales: | , , , , , , |
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| Formato: | Online Artículo Texto |
| Lenguaje: | English |
| Publicado: |
IOS Press
2017
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| Materias: | |
| Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5611797/ https://www.ncbi.nlm.nih.gov/pubmed/28800337 http://dx.doi.org/10.3233/JND-170240 |