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Activities, Participation and Quality of Life Concepts in Children and Adolescents with Celiac Disease: A Scoping Review

Celiac disease (CD) is a food-related chronic condition and adherence to a strict gluten-free diet is the only available treatment. Adherence to the restrictive diet is challenging among children, especially adolescents. The aim was to describe existing knowledge about food-related activities, parti...

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Autores principales: Meyer, Sonya, Rosenblum, Sara
Formato: Online Artículo Texto
Lenguaje:English
Publicado: MDPI 2017
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5622689/
https://www.ncbi.nlm.nih.gov/pubmed/28837103
http://dx.doi.org/10.3390/nu9090929
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author Meyer, Sonya
Rosenblum, Sara
author_facet Meyer, Sonya
Rosenblum, Sara
author_sort Meyer, Sonya
collection PubMed
description Celiac disease (CD) is a food-related chronic condition and adherence to a strict gluten-free diet is the only available treatment. Adherence to the restrictive diet is challenging among children, especially adolescents. The aim was to describe existing knowledge about food-related activities, participation, and quality of life in daily life among children and adolescents with CD and to illuminate gaps in knowledge. The scoping review methodology was applied and literature searches were conducted in electronic databases. Twenty-three articles met the inclusion criteria. Food-related activities were identified, classified, and coded under the International Classification of Functioning, Disability, and Health adapted for children and youth (ICF-CY) concepts of activities and participation. A wide variety of study populations, objectives, methods, and tools involving 55 different food-related activities were found. Incorporation of the ICF-CY concepts and quality of life captures new insights into everyday challenges. Reviewing the CD literature using this different lens reveals areas yet to receive sufficient attention. Further research can deepen the understanding of daily functioning of children with CD and the underlying skills required to participate in daily food-related activities while adhering to the diet. This can lead to the development of standardized disease-specific assessment tools and suitable intervention programs.
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spelling pubmed-56226892017-10-05 Activities, Participation and Quality of Life Concepts in Children and Adolescents with Celiac Disease: A Scoping Review Meyer, Sonya Rosenblum, Sara Nutrients Review Celiac disease (CD) is a food-related chronic condition and adherence to a strict gluten-free diet is the only available treatment. Adherence to the restrictive diet is challenging among children, especially adolescents. The aim was to describe existing knowledge about food-related activities, participation, and quality of life in daily life among children and adolescents with CD and to illuminate gaps in knowledge. The scoping review methodology was applied and literature searches were conducted in electronic databases. Twenty-three articles met the inclusion criteria. Food-related activities were identified, classified, and coded under the International Classification of Functioning, Disability, and Health adapted for children and youth (ICF-CY) concepts of activities and participation. A wide variety of study populations, objectives, methods, and tools involving 55 different food-related activities were found. Incorporation of the ICF-CY concepts and quality of life captures new insights into everyday challenges. Reviewing the CD literature using this different lens reveals areas yet to receive sufficient attention. Further research can deepen the understanding of daily functioning of children with CD and the underlying skills required to participate in daily food-related activities while adhering to the diet. This can lead to the development of standardized disease-specific assessment tools and suitable intervention programs. MDPI 2017-08-24 /pmc/articles/PMC5622689/ /pubmed/28837103 http://dx.doi.org/10.3390/nu9090929 Text en © 2017 by the authors. Licensee MDPI, Basel, Switzerland. This article is an open access article distributed under the terms and conditions of the Creative Commons Attribution (CC BY) license (http://creativecommons.org/licenses/by/4.0/).
spellingShingle Review
Meyer, Sonya
Rosenblum, Sara
Activities, Participation and Quality of Life Concepts in Children and Adolescents with Celiac Disease: A Scoping Review
title Activities, Participation and Quality of Life Concepts in Children and Adolescents with Celiac Disease: A Scoping Review
title_full Activities, Participation and Quality of Life Concepts in Children and Adolescents with Celiac Disease: A Scoping Review
title_fullStr Activities, Participation and Quality of Life Concepts in Children and Adolescents with Celiac Disease: A Scoping Review
title_full_unstemmed Activities, Participation and Quality of Life Concepts in Children and Adolescents with Celiac Disease: A Scoping Review
title_short Activities, Participation and Quality of Life Concepts in Children and Adolescents with Celiac Disease: A Scoping Review
title_sort activities, participation and quality of life concepts in children and adolescents with celiac disease: a scoping review
topic Review
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5622689/
https://www.ncbi.nlm.nih.gov/pubmed/28837103
http://dx.doi.org/10.3390/nu9090929
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