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Extending “Continuity of Care” to include the Contribution of Family Carers

BACKGROUND: Family carers, as a “shadow workforce”, are foundational to the day-to-day integration of health service delivery for older family members living with complex health needs. This paper utilises Haggerty’s model of continuity of care to explore the contribution of family carers’ to the pro...

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Autores principales: Wong-Cornall, Cecilia, Parsons, John, Sheridan, Nicolette, Kenealy, Timothy, Peckham, Allie
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Ubiquity Press 2017
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5624104/
https://www.ncbi.nlm.nih.gov/pubmed/28970752
http://dx.doi.org/10.5334/ijic.2545
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author Wong-Cornall, Cecilia
Parsons, John
Sheridan, Nicolette
Kenealy, Timothy
Peckham, Allie
author_facet Wong-Cornall, Cecilia
Parsons, John
Sheridan, Nicolette
Kenealy, Timothy
Peckham, Allie
author_sort Wong-Cornall, Cecilia
collection PubMed
description BACKGROUND: Family carers, as a “shadow workforce”, are foundational to the day-to-day integration of health service delivery for older family members living with complex health needs. This paper utilises Haggerty’s model of continuity of care to explore the contribution of family carers’ to the provision of care and support for an older family member’s chronic condition within the context of health service delivery. METHODS: We analysed data from interviews of 13 family carers in a case study of primary health care in New Zealand – a Maori Provider Organisation – to determine the alignment of family caregiving with the three levels of continuity of care (relational continuity, informational continuity, and management continuity). RESULTS: We found alignment of family caregiving tasks, responsibilities, and relationships with the three levels of continuity of care. Family carers 1) partnered with providers to extend chronic care to the home; 2) transferred and contributed information from one provider/service to another; 3) supported consistent and flexible management of care. DISCUSSION: The Maori Provider Organisation supported family carer-provider partnership enabled by shared Maori cultural values and social mandate of building family-centred wellbeing. Relational continuity was the most important level of continuity of care; it sets precedence for family carers and providers to establish the other levels – informational and management – continuity of care for their family member cared for. Family carers need to be considered as active partners working alongside responsive primary health care providers and organisation in the implementation of chronic care.
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spelling pubmed-56241042017-10-02 Extending “Continuity of Care” to include the Contribution of Family Carers Wong-Cornall, Cecilia Parsons, John Sheridan, Nicolette Kenealy, Timothy Peckham, Allie Int J Integr Care Research and Theory BACKGROUND: Family carers, as a “shadow workforce”, are foundational to the day-to-day integration of health service delivery for older family members living with complex health needs. This paper utilises Haggerty’s model of continuity of care to explore the contribution of family carers’ to the provision of care and support for an older family member’s chronic condition within the context of health service delivery. METHODS: We analysed data from interviews of 13 family carers in a case study of primary health care in New Zealand – a Maori Provider Organisation – to determine the alignment of family caregiving with the three levels of continuity of care (relational continuity, informational continuity, and management continuity). RESULTS: We found alignment of family caregiving tasks, responsibilities, and relationships with the three levels of continuity of care. Family carers 1) partnered with providers to extend chronic care to the home; 2) transferred and contributed information from one provider/service to another; 3) supported consistent and flexible management of care. DISCUSSION: The Maori Provider Organisation supported family carer-provider partnership enabled by shared Maori cultural values and social mandate of building family-centred wellbeing. Relational continuity was the most important level of continuity of care; it sets precedence for family carers and providers to establish the other levels – informational and management – continuity of care for their family member cared for. Family carers need to be considered as active partners working alongside responsive primary health care providers and organisation in the implementation of chronic care. Ubiquity Press 2017-06-27 /pmc/articles/PMC5624104/ /pubmed/28970752 http://dx.doi.org/10.5334/ijic.2545 Text en Copyright: © 2017 The Author(s) http://creativecommons.org/licenses/by/4.0/ This is an open-access article distributed under the terms of the Creative Commons Attribution 4.0 International License (CC-BY 4.0), which permits unrestricted use, distribution, and reproduction in any medium, provided the original author and source are credited. See http://creativecommons.org/licenses/by/4.0/.
spellingShingle Research and Theory
Wong-Cornall, Cecilia
Parsons, John
Sheridan, Nicolette
Kenealy, Timothy
Peckham, Allie
Extending “Continuity of Care” to include the Contribution of Family Carers
title Extending “Continuity of Care” to include the Contribution of Family Carers
title_full Extending “Continuity of Care” to include the Contribution of Family Carers
title_fullStr Extending “Continuity of Care” to include the Contribution of Family Carers
title_full_unstemmed Extending “Continuity of Care” to include the Contribution of Family Carers
title_short Extending “Continuity of Care” to include the Contribution of Family Carers
title_sort extending “continuity of care” to include the contribution of family carers
topic Research and Theory
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5624104/
https://www.ncbi.nlm.nih.gov/pubmed/28970752
http://dx.doi.org/10.5334/ijic.2545
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