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Components and Outcomes of Internet-Based Interventions for Caregivers of Older Adults: Systematic Review

BACKGROUND: When trying to access interventions to improve their well-being and quality of life, family caregivers face many challenges. Internet-based interventions provide new and accessible opportunities to remotely support them and can contribute to reducing their burden. However, little is know...

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Autores principales: Guay, Cassioppée, Auger, Claudine, Demers, Louise, Mortenson, W Ben, Miller, William C, Gélinas-Bronsard, Dominique, Ahmed, Sara
Formato: Online Artículo Texto
Lenguaje:English
Publicado: JMIR Publications 2017
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5627044/
https://www.ncbi.nlm.nih.gov/pubmed/28928109
http://dx.doi.org/10.2196/jmir.7896
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author Guay, Cassioppée
Auger, Claudine
Demers, Louise
Mortenson, W Ben
Miller, William C
Gélinas-Bronsard, Dominique
Ahmed, Sara
author_facet Guay, Cassioppée
Auger, Claudine
Demers, Louise
Mortenson, W Ben
Miller, William C
Gélinas-Bronsard, Dominique
Ahmed, Sara
author_sort Guay, Cassioppée
collection PubMed
description BACKGROUND: When trying to access interventions to improve their well-being and quality of life, family caregivers face many challenges. Internet-based interventions provide new and accessible opportunities to remotely support them and can contribute to reducing their burden. However, little is known about the link existing between the components, the use of behavior change techniques, and the outcomes of these Internet-based interventions. OBJECTIVE: This study aimed to provide an update on the best available evidence about the efficacy of Internet-based interventions for caregivers of older adults. Specifically, the components and the use of behavior change techniques and how they impact on the efficacy of the intervention were sought. METHODS: A systematic review searched primary source studies published between 2000 and 2015. Included studies were scored with a high level of evidence by independent raters using the GRADE criteria and reported caregiver-specific outcomes about interventions delivered through the Internet for caregivers of people aged 50 years and older. A narrative synthesis identified intervention components (eg, content, multimedia use, interactive online activities, and provision of support), behavior change techniques, and caregiver outcomes (eg, effects on stressors, mediators, and psychological health). The risk of bias within the included studies was assessed. RESULTS: A total of 2338 articles were screened and 12 studies describing 10 Internet-based interventions were identified. Seven of these interventions led to statistically significant improvements in caregiver outcomes (eg, reducing depression or anxiety, n=4). These efficacious interventions used interactive components, such as online exercises and homework (n=4) or questionnaires on health status (n=2) and five of them incorporated remote human support, either by professionals or peers. The most frequently used behavior change techniques included in efficacious interventions were provision of social support (n=6) and combinations of instructions to guide behavior change and barrier identification (n=5). The design and aim of the included studies did not permit determining exactly which component and/or behavior change technique was more efficacious in producing positive outcomes in caregivers. The risk for selection bias was low for all the studies, and low to high for performance, detection, and attrition biases. CONCLUSIONS: In sum, Internet-based interventions that incorporate professional and social support, and provide instructions to change behavior and problem solve in an interactive manner appear to lead to positive outcomes in caregivers. Studies isolating the specific effect of components are needed to improve our understanding of the underlying mechanism of action.
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spelling pubmed-56270442017-10-20 Components and Outcomes of Internet-Based Interventions for Caregivers of Older Adults: Systematic Review Guay, Cassioppée Auger, Claudine Demers, Louise Mortenson, W Ben Miller, William C Gélinas-Bronsard, Dominique Ahmed, Sara J Med Internet Res Review BACKGROUND: When trying to access interventions to improve their well-being and quality of life, family caregivers face many challenges. Internet-based interventions provide new and accessible opportunities to remotely support them and can contribute to reducing their burden. However, little is known about the link existing between the components, the use of behavior change techniques, and the outcomes of these Internet-based interventions. OBJECTIVE: This study aimed to provide an update on the best available evidence about the efficacy of Internet-based interventions for caregivers of older adults. Specifically, the components and the use of behavior change techniques and how they impact on the efficacy of the intervention were sought. METHODS: A systematic review searched primary source studies published between 2000 and 2015. Included studies were scored with a high level of evidence by independent raters using the GRADE criteria and reported caregiver-specific outcomes about interventions delivered through the Internet for caregivers of people aged 50 years and older. A narrative synthesis identified intervention components (eg, content, multimedia use, interactive online activities, and provision of support), behavior change techniques, and caregiver outcomes (eg, effects on stressors, mediators, and psychological health). The risk of bias within the included studies was assessed. RESULTS: A total of 2338 articles were screened and 12 studies describing 10 Internet-based interventions were identified. Seven of these interventions led to statistically significant improvements in caregiver outcomes (eg, reducing depression or anxiety, n=4). These efficacious interventions used interactive components, such as online exercises and homework (n=4) or questionnaires on health status (n=2) and five of them incorporated remote human support, either by professionals or peers. The most frequently used behavior change techniques included in efficacious interventions were provision of social support (n=6) and combinations of instructions to guide behavior change and barrier identification (n=5). The design and aim of the included studies did not permit determining exactly which component and/or behavior change technique was more efficacious in producing positive outcomes in caregivers. The risk for selection bias was low for all the studies, and low to high for performance, detection, and attrition biases. CONCLUSIONS: In sum, Internet-based interventions that incorporate professional and social support, and provide instructions to change behavior and problem solve in an interactive manner appear to lead to positive outcomes in caregivers. Studies isolating the specific effect of components are needed to improve our understanding of the underlying mechanism of action. JMIR Publications 2017-09-19 /pmc/articles/PMC5627044/ /pubmed/28928109 http://dx.doi.org/10.2196/jmir.7896 Text en ©Cassioppée Guay, Claudine Auger, Louise Demers, W Ben Mortenson, William C Miller, Dominique Gélinas-Bronsard, Sara Ahmed. Originally published in the Journal of Medical Internet Research (http://www.jmir.org), 19.09.2017. https://creativecommons.org/licenses/by/4.0/ This is an open-access article distributed under the terms of the Creative Commons Attribution License (https://creativecommons.org/licenses/by/4.0/), which permits unrestricted use, distribution, and reproduction in any medium, provided the original work, first published in the Journal of Medical Internet Research, is properly cited. The complete bibliographic information, a link to the original publication on http://www.jmir.org/, as well as this copyright and license information must be included.
spellingShingle Review
Guay, Cassioppée
Auger, Claudine
Demers, Louise
Mortenson, W Ben
Miller, William C
Gélinas-Bronsard, Dominique
Ahmed, Sara
Components and Outcomes of Internet-Based Interventions for Caregivers of Older Adults: Systematic Review
title Components and Outcomes of Internet-Based Interventions for Caregivers of Older Adults: Systematic Review
title_full Components and Outcomes of Internet-Based Interventions for Caregivers of Older Adults: Systematic Review
title_fullStr Components and Outcomes of Internet-Based Interventions for Caregivers of Older Adults: Systematic Review
title_full_unstemmed Components and Outcomes of Internet-Based Interventions for Caregivers of Older Adults: Systematic Review
title_short Components and Outcomes of Internet-Based Interventions for Caregivers of Older Adults: Systematic Review
title_sort components and outcomes of internet-based interventions for caregivers of older adults: systematic review
topic Review
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5627044/
https://www.ncbi.nlm.nih.gov/pubmed/28928109
http://dx.doi.org/10.2196/jmir.7896
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