Cargando…

The GapMap project: a mobile surveillance system to map diagnosed autism cases and gaps in autism services globally

Although the number of autism diagnoses is on the rise, we have no evidence-based tracking of size and severity of gaps in access to autism-related resources, nor do we have methods to geographically triangulate the locations of the widest gaps in either the US or elsewhere across the globe. To comb...

Descripción completa

Detalles Bibliográficos
Autores principales: Daniels, Jena, Schwartz, Jessey, Albert, Nikhila, Du, Michael, Wall, Dennis P.
Formato: Online Artículo Texto
Lenguaje:English
Publicado: BioMed Central 2017
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5651585/
https://www.ncbi.nlm.nih.gov/pubmed/29075431
http://dx.doi.org/10.1186/s13229-017-0163-7
_version_ 1783272921806929920
author Daniels, Jena
Schwartz, Jessey
Albert, Nikhila
Du, Michael
Wall, Dennis P.
author_facet Daniels, Jena
Schwartz, Jessey
Albert, Nikhila
Du, Michael
Wall, Dennis P.
author_sort Daniels, Jena
collection PubMed
description Although the number of autism diagnoses is on the rise, we have no evidence-based tracking of size and severity of gaps in access to autism-related resources, nor do we have methods to geographically triangulate the locations of the widest gaps in either the US or elsewhere across the globe. To combat these related issues of (1) mapping diagnosed cases of autism and (2) quantifying gaps in access to key intervention services, we have constructed a crowd-based mobile platform called “GapMap” (http://gapmap.stanford.edu) for real-time tracking of autism prevalence and autism-related resources that can be accessed from any mobile device with cellular or wireless connectivity. Now in beta, our aim is for this Android/iOS compatible mobile tool to simultaneously crowd-enroll the massive and growing community of families with autism to capture geographic, diagnostic, and resource usage information while automatically computing prevalence at granular geographical scales to yield a more complete and dynamic understanding of autism resource epidemiology.
format Online
Article
Text
id pubmed-5651585
institution National Center for Biotechnology Information
language English
publishDate 2017
publisher BioMed Central
record_format MEDLINE/PubMed
spelling pubmed-56515852017-10-26 The GapMap project: a mobile surveillance system to map diagnosed autism cases and gaps in autism services globally Daniels, Jena Schwartz, Jessey Albert, Nikhila Du, Michael Wall, Dennis P. Mol Autism Viewpoint Although the number of autism diagnoses is on the rise, we have no evidence-based tracking of size and severity of gaps in access to autism-related resources, nor do we have methods to geographically triangulate the locations of the widest gaps in either the US or elsewhere across the globe. To combat these related issues of (1) mapping diagnosed cases of autism and (2) quantifying gaps in access to key intervention services, we have constructed a crowd-based mobile platform called “GapMap” (http://gapmap.stanford.edu) for real-time tracking of autism prevalence and autism-related resources that can be accessed from any mobile device with cellular or wireless connectivity. Now in beta, our aim is for this Android/iOS compatible mobile tool to simultaneously crowd-enroll the massive and growing community of families with autism to capture geographic, diagnostic, and resource usage information while automatically computing prevalence at granular geographical scales to yield a more complete and dynamic understanding of autism resource epidemiology. BioMed Central 2017-10-23 /pmc/articles/PMC5651585/ /pubmed/29075431 http://dx.doi.org/10.1186/s13229-017-0163-7 Text en © The Author(s). 2017 Open AccessThis article is distributed under the terms of the Creative Commons Attribution 4.0 International License (http://creativecommons.org/licenses/by/4.0/), which permits unrestricted use, distribution, and reproduction in any medium, provided you give appropriate credit to the original author(s) and the source, provide a link to the Creative Commons license, and indicate if changes were made. The Creative Commons Public Domain Dedication waiver (http://creativecommons.org/publicdomain/zero/1.0/) applies to the data made available in this article, unless otherwise stated.
spellingShingle Viewpoint
Daniels, Jena
Schwartz, Jessey
Albert, Nikhila
Du, Michael
Wall, Dennis P.
The GapMap project: a mobile surveillance system to map diagnosed autism cases and gaps in autism services globally
title The GapMap project: a mobile surveillance system to map diagnosed autism cases and gaps in autism services globally
title_full The GapMap project: a mobile surveillance system to map diagnosed autism cases and gaps in autism services globally
title_fullStr The GapMap project: a mobile surveillance system to map diagnosed autism cases and gaps in autism services globally
title_full_unstemmed The GapMap project: a mobile surveillance system to map diagnosed autism cases and gaps in autism services globally
title_short The GapMap project: a mobile surveillance system to map diagnosed autism cases and gaps in autism services globally
title_sort gapmap project: a mobile surveillance system to map diagnosed autism cases and gaps in autism services globally
topic Viewpoint
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5651585/
https://www.ncbi.nlm.nih.gov/pubmed/29075431
http://dx.doi.org/10.1186/s13229-017-0163-7
work_keys_str_mv AT danielsjena thegapmapprojectamobilesurveillancesystemtomapdiagnosedautismcasesandgapsinautismservicesglobally
AT schwartzjessey thegapmapprojectamobilesurveillancesystemtomapdiagnosedautismcasesandgapsinautismservicesglobally
AT albertnikhila thegapmapprojectamobilesurveillancesystemtomapdiagnosedautismcasesandgapsinautismservicesglobally
AT dumichael thegapmapprojectamobilesurveillancesystemtomapdiagnosedautismcasesandgapsinautismservicesglobally
AT walldennisp thegapmapprojectamobilesurveillancesystemtomapdiagnosedautismcasesandgapsinautismservicesglobally
AT danielsjena gapmapprojectamobilesurveillancesystemtomapdiagnosedautismcasesandgapsinautismservicesglobally
AT schwartzjessey gapmapprojectamobilesurveillancesystemtomapdiagnosedautismcasesandgapsinautismservicesglobally
AT albertnikhila gapmapprojectamobilesurveillancesystemtomapdiagnosedautismcasesandgapsinautismservicesglobally
AT dumichael gapmapprojectamobilesurveillancesystemtomapdiagnosedautismcasesandgapsinautismservicesglobally
AT walldennisp gapmapprojectamobilesurveillancesystemtomapdiagnosedautismcasesandgapsinautismservicesglobally