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Developing multidisciplinary clinics for neuromuscular care and research

Multidisciplinary care is considered the standard of care for both adult and pediatric neuromuscular disorders and has been associated with improved quality of life, resource utilization, and health outcomes. Multidisciplinary care is delivered in multidisciplinary clinics that coordinate care acros...

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Autores principales: Paganoni, Sabrina, Nicholson, Katie, Leigh, Fawn, Swoboda, Kathryn, Chad, David, Drake, Kristin, Haley, Kellen, Cudkowicz, Merit, Berry, James D.
Formato: Online Artículo Texto
Lenguaje:English
Publicado: John Wiley and Sons Inc. 2017
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5656914/
https://www.ncbi.nlm.nih.gov/pubmed/28632945
http://dx.doi.org/10.1002/mus.25725
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author Paganoni, Sabrina
Nicholson, Katie
Leigh, Fawn
Swoboda, Kathryn
Chad, David
Drake, Kristin
Haley, Kellen
Cudkowicz, Merit
Berry, James D.
author_facet Paganoni, Sabrina
Nicholson, Katie
Leigh, Fawn
Swoboda, Kathryn
Chad, David
Drake, Kristin
Haley, Kellen
Cudkowicz, Merit
Berry, James D.
author_sort Paganoni, Sabrina
collection PubMed
description Multidisciplinary care is considered the standard of care for both adult and pediatric neuromuscular disorders and has been associated with improved quality of life, resource utilization, and health outcomes. Multidisciplinary care is delivered in multidisciplinary clinics that coordinate care across multiple specialties by reducing travel burden and streamlining care. In addition, the multidisciplinary care setting facilitates the integration of clinical research, patient advocacy, and care innovation (e.g., telehealth). Yet, multidisciplinary care requires substantial commitment of staff time and resources. We calculated personnel costs in our ALS clinic in 2015 and found an average cost per patient visit of $580, of which only 45% was covered by insurance reimbursement. In this review, we will describe classic and emerging concepts in multidisciplinary care models for adult and pediatric neuromuscular disease. We will then explore the financial impact of multidisciplinary care with emphasis on sustainability and metrics to demonstrate quality and value. Muscle Nerve 56: 848–858, 2017
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spelling pubmed-56569142017-11-01 Developing multidisciplinary clinics for neuromuscular care and research Paganoni, Sabrina Nicholson, Katie Leigh, Fawn Swoboda, Kathryn Chad, David Drake, Kristin Haley, Kellen Cudkowicz, Merit Berry, James D. Muscle Nerve Invited Reviews Multidisciplinary care is considered the standard of care for both adult and pediatric neuromuscular disorders and has been associated with improved quality of life, resource utilization, and health outcomes. Multidisciplinary care is delivered in multidisciplinary clinics that coordinate care across multiple specialties by reducing travel burden and streamlining care. In addition, the multidisciplinary care setting facilitates the integration of clinical research, patient advocacy, and care innovation (e.g., telehealth). Yet, multidisciplinary care requires substantial commitment of staff time and resources. We calculated personnel costs in our ALS clinic in 2015 and found an average cost per patient visit of $580, of which only 45% was covered by insurance reimbursement. In this review, we will describe classic and emerging concepts in multidisciplinary care models for adult and pediatric neuromuscular disease. We will then explore the financial impact of multidisciplinary care with emphasis on sustainability and metrics to demonstrate quality and value. Muscle Nerve 56: 848–858, 2017 John Wiley and Sons Inc. 2017-08-29 2017-11 /pmc/articles/PMC5656914/ /pubmed/28632945 http://dx.doi.org/10.1002/mus.25725 Text en © 2017 The Authors Muscle & Nerve Published by Wiley Periodicals, Inc. This is an open access article under the terms of the Creative Commons Attribution‐NonCommercial (http://creativecommons.org/licenses/by-nc/4.0/) License, which permits use, distribution and reproduction in any medium, provided the original work is properly cited and is not used for commercial purposes.
spellingShingle Invited Reviews
Paganoni, Sabrina
Nicholson, Katie
Leigh, Fawn
Swoboda, Kathryn
Chad, David
Drake, Kristin
Haley, Kellen
Cudkowicz, Merit
Berry, James D.
Developing multidisciplinary clinics for neuromuscular care and research
title Developing multidisciplinary clinics for neuromuscular care and research
title_full Developing multidisciplinary clinics for neuromuscular care and research
title_fullStr Developing multidisciplinary clinics for neuromuscular care and research
title_full_unstemmed Developing multidisciplinary clinics for neuromuscular care and research
title_short Developing multidisciplinary clinics for neuromuscular care and research
title_sort developing multidisciplinary clinics for neuromuscular care and research
topic Invited Reviews
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5656914/
https://www.ncbi.nlm.nih.gov/pubmed/28632945
http://dx.doi.org/10.1002/mus.25725
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