Cargando…
Parents' Knowledge and Attitude Regarding Their Child's Cancer and Effectiveness of Initial Disease Counseling in Pediatric Oncology Patients
OBJECTIVE: To examine parent's knowledge, attitude and psychosocial response regarding their child's cancer and treatment after initial disease counseling by doctor. MATERIALS AND METHODS: Structured questionnaire based study of 43 mothers of newly diagnosed pediatric cancer patients under...
Autores principales: | , , , |
---|---|
Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
Medknow Publications & Media Pvt Ltd
2017
|
Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5661340/ https://www.ncbi.nlm.nih.gov/pubmed/29123344 http://dx.doi.org/10.4103/IJPC.IJPC_83_17 |
_version_ | 1783274463235670016 |
---|---|
author | Nair, Manjusha Paul, Lidiya T Latha, PT Parukkutty, Kusumakumary |
author_facet | Nair, Manjusha Paul, Lidiya T Latha, PT Parukkutty, Kusumakumary |
author_sort | Nair, Manjusha |
collection | PubMed |
description | OBJECTIVE: To examine parent's knowledge, attitude and psychosocial response regarding their child's cancer and treatment after initial disease counseling by doctor. MATERIALS AND METHODS: Structured questionnaire based study of 43 mothers of newly diagnosed pediatric cancer patients undergoing treatment in pediatric oncology division. Mothers received initial counseling regarding their child's cancer and treatment from the doctor. Questionnaire was administered 2-6 months after initial counseling and mothers self-reported their responses. RESULTS: 83% mothers had school level education only and 84% belonged to lower and middle socio-economic status. More than 80% mothers knew the name of their child's cancer, type of treatment received by child and approximate duration of treatment. 93% knew regarding painful procedures and 84% mothers reported knowledge about chemotherapy side effects. Hope of cure and satisfaction with treatment were reported by 90% mothers. 81% mothers reported high levels of anxiety and 66% worried regarding painful procedures. As high as 60% of parents were afraid to send their child outside to play and 40% were afraid to send their child to school. 40% mothers wanted more information regarding child's higher education, married life & fertility. On statistical analysis, mother's age, educational status or family background did not influence their knowledge and attitude. CONCLUSION: Relevant information about child's cancer and treatment can be imparted effectively even to mothers with school level education. This knowledge helps to instill hopeful attitude, confidence and satisfaction in parents. Anxiety and fear related to cancer persists in mothers even after the initial stress period is over. Pain related to injections and procedures is a major concern in parents. Involvement of counselor in the treating team is desirable to overcome these problems. |
format | Online Article Text |
id | pubmed-5661340 |
institution | National Center for Biotechnology Information |
language | English |
publishDate | 2017 |
publisher | Medknow Publications & Media Pvt Ltd |
record_format | MEDLINE/PubMed |
spelling | pubmed-56613402017-11-09 Parents' Knowledge and Attitude Regarding Their Child's Cancer and Effectiveness of Initial Disease Counseling in Pediatric Oncology Patients Nair, Manjusha Paul, Lidiya T Latha, PT Parukkutty, Kusumakumary Indian J Palliat Care Original Article OBJECTIVE: To examine parent's knowledge, attitude and psychosocial response regarding their child's cancer and treatment after initial disease counseling by doctor. MATERIALS AND METHODS: Structured questionnaire based study of 43 mothers of newly diagnosed pediatric cancer patients undergoing treatment in pediatric oncology division. Mothers received initial counseling regarding their child's cancer and treatment from the doctor. Questionnaire was administered 2-6 months after initial counseling and mothers self-reported their responses. RESULTS: 83% mothers had school level education only and 84% belonged to lower and middle socio-economic status. More than 80% mothers knew the name of their child's cancer, type of treatment received by child and approximate duration of treatment. 93% knew regarding painful procedures and 84% mothers reported knowledge about chemotherapy side effects. Hope of cure and satisfaction with treatment were reported by 90% mothers. 81% mothers reported high levels of anxiety and 66% worried regarding painful procedures. As high as 60% of parents were afraid to send their child outside to play and 40% were afraid to send their child to school. 40% mothers wanted more information regarding child's higher education, married life & fertility. On statistical analysis, mother's age, educational status or family background did not influence their knowledge and attitude. CONCLUSION: Relevant information about child's cancer and treatment can be imparted effectively even to mothers with school level education. This knowledge helps to instill hopeful attitude, confidence and satisfaction in parents. Anxiety and fear related to cancer persists in mothers even after the initial stress period is over. Pain related to injections and procedures is a major concern in parents. Involvement of counselor in the treating team is desirable to overcome these problems. Medknow Publications & Media Pvt Ltd 2017 /pmc/articles/PMC5661340/ /pubmed/29123344 http://dx.doi.org/10.4103/IJPC.IJPC_83_17 Text en Copyright: © 2017 Indian Journal of Palliative Care http://creativecommons.org/licenses/by-nc-sa/3.0 This is an open access article distributed under the terms of the Creative Commons Attribution-NonCommercial-ShareAlike 3.0 License, which allows others to remix, tweak, and build upon the work non-commercially, as long as the author is credited and the new creations are licensed under the identical terms. |
spellingShingle | Original Article Nair, Manjusha Paul, Lidiya T Latha, PT Parukkutty, Kusumakumary Parents' Knowledge and Attitude Regarding Their Child's Cancer and Effectiveness of Initial Disease Counseling in Pediatric Oncology Patients |
title | Parents' Knowledge and Attitude Regarding Their Child's Cancer and Effectiveness of Initial Disease Counseling in Pediatric Oncology Patients |
title_full | Parents' Knowledge and Attitude Regarding Their Child's Cancer and Effectiveness of Initial Disease Counseling in Pediatric Oncology Patients |
title_fullStr | Parents' Knowledge and Attitude Regarding Their Child's Cancer and Effectiveness of Initial Disease Counseling in Pediatric Oncology Patients |
title_full_unstemmed | Parents' Knowledge and Attitude Regarding Their Child's Cancer and Effectiveness of Initial Disease Counseling in Pediatric Oncology Patients |
title_short | Parents' Knowledge and Attitude Regarding Their Child's Cancer and Effectiveness of Initial Disease Counseling in Pediatric Oncology Patients |
title_sort | parents' knowledge and attitude regarding their child's cancer and effectiveness of initial disease counseling in pediatric oncology patients |
topic | Original Article |
url | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5661340/ https://www.ncbi.nlm.nih.gov/pubmed/29123344 http://dx.doi.org/10.4103/IJPC.IJPC_83_17 |
work_keys_str_mv | AT nairmanjusha parentsknowledgeandattituderegardingtheirchildscancerandeffectivenessofinitialdiseasecounselinginpediatriconcologypatients AT paullidiyat parentsknowledgeandattituderegardingtheirchildscancerandeffectivenessofinitialdiseasecounselinginpediatriconcologypatients AT lathapt parentsknowledgeandattituderegardingtheirchildscancerandeffectivenessofinitialdiseasecounselinginpediatriconcologypatients AT parukkuttykusumakumary parentsknowledgeandattituderegardingtheirchildscancerandeffectivenessofinitialdiseasecounselinginpediatriconcologypatients |