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Feasibility of RetinoQuest: e-health application to facilitate and improve additional care for retinoblastoma survivors

PURPOSE: The current study aimed to evaluate the feasibility of RetinoQuest in clinical practice, from survivors and healthcare professionals’ (HCPs) point of view. METHODS: RetinoQuest is a touch screen computer program to monitor health-related quality of life (HRQoL) of retinoblastoma survivors v...

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Autores principales: McNeill, Nuray A., Kors, Wijnanda A., Bosscha, Machteld I., van Dijk, Jennifer, Fabius, Armida W. M., Houffelaar, Ton, Verdonck-de Leeuw, Irma M., Moll, Annette C.
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Springer US 2017
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5671548/
https://www.ncbi.nlm.nih.gov/pubmed/28948437
http://dx.doi.org/10.1007/s11764-017-0642-z
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author McNeill, Nuray A.
Kors, Wijnanda A.
Bosscha, Machteld I.
van Dijk, Jennifer
Fabius, Armida W. M.
Houffelaar, Ton
Verdonck-de Leeuw, Irma M.
Moll, Annette C.
author_facet McNeill, Nuray A.
Kors, Wijnanda A.
Bosscha, Machteld I.
van Dijk, Jennifer
Fabius, Armida W. M.
Houffelaar, Ton
Verdonck-de Leeuw, Irma M.
Moll, Annette C.
author_sort McNeill, Nuray A.
collection PubMed
description PURPOSE: The current study aimed to evaluate the feasibility of RetinoQuest in clinical practice, from survivors and healthcare professionals’ (HCPs) point of view. METHODS: RetinoQuest is a touch screen computer program to monitor health-related quality of life (HRQoL) of retinoblastoma survivors via patient-reported outcome measures (PROMs) targeting children (4–10 years) as evaluated by their parents (proxy measures), adolescents (11–18 years), and adults. Feasibility was evaluated by the actual time taken to complete the PROMs, acceptability of the time as perceived by the users, the content of PROMs in RetinoQuest, and overall satisfaction with RetinoQuest. RESULTS: Ninety-six survivors participated: 41 parents of children, 38 adolescents, and 17 adults. Mean time to complete the evaluation form was 7.8 min (median 6.7, range 2.4–24.5), and 90% of the users stated that the time needed to complete PROMs in RetinoQuest was acceptable. The majority of users reported that it was important to answer the questions (88% of the parents, 66% of the adolescents, and 76% of the adult survivors) and that all important issues were covered, e.g., no missing questions (78, 84, and 76%, respectively). Satisfaction rate was high, 7.8 according to parents, 8.1 according to adolescents, and 7.7 for adults. CONCLUSIONS: RetinoQuest is a feasible e-health application to monitor HRQoL in retinoblastoma survivors in clinical practice. IMPLICATIONS FOR CANCER SURVIVORS: This tool allows for open and structured communication which can lead to early detection of psychosocial impacts on quality of life and referral of the retinoblastoma survivors. ELECTRONIC SUPPLEMENTARY MATERIAL: The online version of this article (10.1007/s11764-017-0642-z) contains supplementary material, which is available to authorized users.
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spelling pubmed-56715482017-11-17 Feasibility of RetinoQuest: e-health application to facilitate and improve additional care for retinoblastoma survivors McNeill, Nuray A. Kors, Wijnanda A. Bosscha, Machteld I. van Dijk, Jennifer Fabius, Armida W. M. Houffelaar, Ton Verdonck-de Leeuw, Irma M. Moll, Annette C. J Cancer Surviv Article PURPOSE: The current study aimed to evaluate the feasibility of RetinoQuest in clinical practice, from survivors and healthcare professionals’ (HCPs) point of view. METHODS: RetinoQuest is a touch screen computer program to monitor health-related quality of life (HRQoL) of retinoblastoma survivors via patient-reported outcome measures (PROMs) targeting children (4–10 years) as evaluated by their parents (proxy measures), adolescents (11–18 years), and adults. Feasibility was evaluated by the actual time taken to complete the PROMs, acceptability of the time as perceived by the users, the content of PROMs in RetinoQuest, and overall satisfaction with RetinoQuest. RESULTS: Ninety-six survivors participated: 41 parents of children, 38 adolescents, and 17 adults. Mean time to complete the evaluation form was 7.8 min (median 6.7, range 2.4–24.5), and 90% of the users stated that the time needed to complete PROMs in RetinoQuest was acceptable. The majority of users reported that it was important to answer the questions (88% of the parents, 66% of the adolescents, and 76% of the adult survivors) and that all important issues were covered, e.g., no missing questions (78, 84, and 76%, respectively). Satisfaction rate was high, 7.8 according to parents, 8.1 according to adolescents, and 7.7 for adults. CONCLUSIONS: RetinoQuest is a feasible e-health application to monitor HRQoL in retinoblastoma survivors in clinical practice. IMPLICATIONS FOR CANCER SURVIVORS: This tool allows for open and structured communication which can lead to early detection of psychosocial impacts on quality of life and referral of the retinoblastoma survivors. ELECTRONIC SUPPLEMENTARY MATERIAL: The online version of this article (10.1007/s11764-017-0642-z) contains supplementary material, which is available to authorized users. Springer US 2017-09-25 2017 /pmc/articles/PMC5671548/ /pubmed/28948437 http://dx.doi.org/10.1007/s11764-017-0642-z Text en © The Author(s) 2017 Open Access This article is distributed under the terms of the Creative Commons Attribution 4.0 International License (http://creativecommons.org/licenses/by/4.0/), which permits unrestricted use, distribution, and reproduction in any medium, provided you give appropriate credit to the original author(s) and the source, provide a link to the Creative Commons license, and indicate if changes were made.
spellingShingle Article
McNeill, Nuray A.
Kors, Wijnanda A.
Bosscha, Machteld I.
van Dijk, Jennifer
Fabius, Armida W. M.
Houffelaar, Ton
Verdonck-de Leeuw, Irma M.
Moll, Annette C.
Feasibility of RetinoQuest: e-health application to facilitate and improve additional care for retinoblastoma survivors
title Feasibility of RetinoQuest: e-health application to facilitate and improve additional care for retinoblastoma survivors
title_full Feasibility of RetinoQuest: e-health application to facilitate and improve additional care for retinoblastoma survivors
title_fullStr Feasibility of RetinoQuest: e-health application to facilitate and improve additional care for retinoblastoma survivors
title_full_unstemmed Feasibility of RetinoQuest: e-health application to facilitate and improve additional care for retinoblastoma survivors
title_short Feasibility of RetinoQuest: e-health application to facilitate and improve additional care for retinoblastoma survivors
title_sort feasibility of retinoquest: e-health application to facilitate and improve additional care for retinoblastoma survivors
topic Article
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5671548/
https://www.ncbi.nlm.nih.gov/pubmed/28948437
http://dx.doi.org/10.1007/s11764-017-0642-z
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