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Development of a communication aid for explaining hypertrophic cardiomyopathy genetic test results
BACKGROUND: Large gene panels are now commonplace for hypertrophic cardiomyopathy (HCM), increasing the yield of uncertain genetic findings. Few resources exist which aim to facilitate communication of HCM genetic test results. We sought to develop, pilot, and refine a communication aid for probands...
Autores principales: | Smagarinsky, Yana, Burns, Charlotte, Spinks, Catherine, Semsarian, Christopher, Ingles, Jodie |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
BioMed Central
2017
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5680798/ https://www.ncbi.nlm.nih.gov/pubmed/29152326 http://dx.doi.org/10.1186/s40814-017-0205-0 |
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