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“Part of the Team”: Mapping the outcomes of training patients for new roles in health research and planning
BACKGROUND: A patient research internship (Patient and Community Engagement Research program—PaCER) was created to support a provincial commitment by Alberta Health Services’ Strategic Clinical Networks(™) to find new ways to engage patients in a new interdisciplinary organization to support evidenc...
Autores principales: | , , , |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
John Wiley and Sons Inc.
2017
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5689226/ https://www.ncbi.nlm.nih.gov/pubmed/28660732 http://dx.doi.org/10.1111/hex.12591 |
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author | Shklarov, Svetlana Marshall, Deborah A. Wasylak, Tracy Marlett, Nancy J. |
author_facet | Shklarov, Svetlana Marshall, Deborah A. Wasylak, Tracy Marlett, Nancy J. |
author_sort | Shklarov, Svetlana |
collection | PubMed |
description | BACKGROUND: A patient research internship (Patient and Community Engagement Research program—PaCER) was created to support a provincial commitment by Alberta Health Services’ Strategic Clinical Networks(™) to find new ways to engage patients in a new interdisciplinary organization to support evidence‐informed improvements in clinical outcomes across the health system. OBJECTIVE: Implement and test a new research method and training curriculum to build patient capacity for engagement in health through peer‐to‐peer research. DESIGN: Programme evaluation using Outcome Mapping and the grounded theory method. SETTING AND PARTICIPANTS: Twenty‐one patients with various chronic conditions completed one year of training in adapted qualitative research methods, including an internship where they designed and conducted five peer‐to‐peer inquiries into a range of health experiences. MAIN OUTCOME MEASURES: Outcomes were continually monitored and evaluated using an Outcome Mapping framework, in combination with grounded theory analysis, based on data from focus groups, observation, documentation review and semi‐structured interviews (21 patient researchers, 15 professional collaborators). RESULTS: Key stakeholders indicated the increased capacity of patients to engage in health‐care research and planning, and the introduction and acceptance of new, collaborative roles for patients in health research. The uptake of new patient roles in health‐care planning began to impact attitudes and practices. CONCLUSIONS: Patient researchers become “part of the team” through cultural and relationship changes that occur in two convergent directions: (i) building the capacity of patients to engage confidently in a dialogue with clinicians and decision makers, and (ii) increasing the readiness for patient engagement uptake within targeted organizations. |
format | Online Article Text |
id | pubmed-5689226 |
institution | National Center for Biotechnology Information |
language | English |
publishDate | 2017 |
publisher | John Wiley and Sons Inc. |
record_format | MEDLINE/PubMed |
spelling | pubmed-56892262017-12-01 “Part of the Team”: Mapping the outcomes of training patients for new roles in health research and planning Shklarov, Svetlana Marshall, Deborah A. Wasylak, Tracy Marlett, Nancy J. Health Expect Original Research Papers BACKGROUND: A patient research internship (Patient and Community Engagement Research program—PaCER) was created to support a provincial commitment by Alberta Health Services’ Strategic Clinical Networks(™) to find new ways to engage patients in a new interdisciplinary organization to support evidence‐informed improvements in clinical outcomes across the health system. OBJECTIVE: Implement and test a new research method and training curriculum to build patient capacity for engagement in health through peer‐to‐peer research. DESIGN: Programme evaluation using Outcome Mapping and the grounded theory method. SETTING AND PARTICIPANTS: Twenty‐one patients with various chronic conditions completed one year of training in adapted qualitative research methods, including an internship where they designed and conducted five peer‐to‐peer inquiries into a range of health experiences. MAIN OUTCOME MEASURES: Outcomes were continually monitored and evaluated using an Outcome Mapping framework, in combination with grounded theory analysis, based on data from focus groups, observation, documentation review and semi‐structured interviews (21 patient researchers, 15 professional collaborators). RESULTS: Key stakeholders indicated the increased capacity of patients to engage in health‐care research and planning, and the introduction and acceptance of new, collaborative roles for patients in health research. The uptake of new patient roles in health‐care planning began to impact attitudes and practices. CONCLUSIONS: Patient researchers become “part of the team” through cultural and relationship changes that occur in two convergent directions: (i) building the capacity of patients to engage confidently in a dialogue with clinicians and decision makers, and (ii) increasing the readiness for patient engagement uptake within targeted organizations. John Wiley and Sons Inc. 2017-06-28 2017-12 /pmc/articles/PMC5689226/ /pubmed/28660732 http://dx.doi.org/10.1111/hex.12591 Text en © 2017 The Authors Health Expectations Published by John Wiley & Sons Ltd This is an open access article under the terms of the Creative Commons Attribution (http://creativecommons.org/licenses/by/4.0/) License, which permits use, distribution and reproduction in any medium, provided the original work is properly cited. |
spellingShingle | Original Research Papers Shklarov, Svetlana Marshall, Deborah A. Wasylak, Tracy Marlett, Nancy J. “Part of the Team”: Mapping the outcomes of training patients for new roles in health research and planning |
title | “Part of the Team”: Mapping the outcomes of training patients for new roles in health research and planning |
title_full | “Part of the Team”: Mapping the outcomes of training patients for new roles in health research and planning |
title_fullStr | “Part of the Team”: Mapping the outcomes of training patients for new roles in health research and planning |
title_full_unstemmed | “Part of the Team”: Mapping the outcomes of training patients for new roles in health research and planning |
title_short | “Part of the Team”: Mapping the outcomes of training patients for new roles in health research and planning |
title_sort | “part of the team”: mapping the outcomes of training patients for new roles in health research and planning |
topic | Original Research Papers |
url | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5689226/ https://www.ncbi.nlm.nih.gov/pubmed/28660732 http://dx.doi.org/10.1111/hex.12591 |
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