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“Part of the Team”: Mapping the outcomes of training patients for new roles in health research and planning

BACKGROUND: A patient research internship (Patient and Community Engagement Research program—PaCER) was created to support a provincial commitment by Alberta Health Services’ Strategic Clinical Networks(™) to find new ways to engage patients in a new interdisciplinary organization to support evidenc...

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Autores principales: Shklarov, Svetlana, Marshall, Deborah A., Wasylak, Tracy, Marlett, Nancy J.
Formato: Online Artículo Texto
Lenguaje:English
Publicado: John Wiley and Sons Inc. 2017
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5689226/
https://www.ncbi.nlm.nih.gov/pubmed/28660732
http://dx.doi.org/10.1111/hex.12591
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author Shklarov, Svetlana
Marshall, Deborah A.
Wasylak, Tracy
Marlett, Nancy J.
author_facet Shklarov, Svetlana
Marshall, Deborah A.
Wasylak, Tracy
Marlett, Nancy J.
author_sort Shklarov, Svetlana
collection PubMed
description BACKGROUND: A patient research internship (Patient and Community Engagement Research program—PaCER) was created to support a provincial commitment by Alberta Health Services’ Strategic Clinical Networks(™) to find new ways to engage patients in a new interdisciplinary organization to support evidence‐informed improvements in clinical outcomes across the health system. OBJECTIVE: Implement and test a new research method and training curriculum to build patient capacity for engagement in health through peer‐to‐peer research. DESIGN: Programme evaluation using Outcome Mapping and the grounded theory method. SETTING AND PARTICIPANTS: Twenty‐one patients with various chronic conditions completed one year of training in adapted qualitative research methods, including an internship where they designed and conducted five peer‐to‐peer inquiries into a range of health experiences. MAIN OUTCOME MEASURES: Outcomes were continually monitored and evaluated using an Outcome Mapping framework, in combination with grounded theory analysis, based on data from focus groups, observation, documentation review and semi‐structured interviews (21 patient researchers, 15 professional collaborators). RESULTS: Key stakeholders indicated the increased capacity of patients to engage in health‐care research and planning, and the introduction and acceptance of new, collaborative roles for patients in health research. The uptake of new patient roles in health‐care planning began to impact attitudes and practices. CONCLUSIONS: Patient researchers become “part of the team” through cultural and relationship changes that occur in two convergent directions: (i) building the capacity of patients to engage confidently in a dialogue with clinicians and decision makers, and (ii) increasing the readiness for patient engagement uptake within targeted organizations.
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spelling pubmed-56892262017-12-01 “Part of the Team”: Mapping the outcomes of training patients for new roles in health research and planning Shklarov, Svetlana Marshall, Deborah A. Wasylak, Tracy Marlett, Nancy J. Health Expect Original Research Papers BACKGROUND: A patient research internship (Patient and Community Engagement Research program—PaCER) was created to support a provincial commitment by Alberta Health Services’ Strategic Clinical Networks(™) to find new ways to engage patients in a new interdisciplinary organization to support evidence‐informed improvements in clinical outcomes across the health system. OBJECTIVE: Implement and test a new research method and training curriculum to build patient capacity for engagement in health through peer‐to‐peer research. DESIGN: Programme evaluation using Outcome Mapping and the grounded theory method. SETTING AND PARTICIPANTS: Twenty‐one patients with various chronic conditions completed one year of training in adapted qualitative research methods, including an internship where they designed and conducted five peer‐to‐peer inquiries into a range of health experiences. MAIN OUTCOME MEASURES: Outcomes were continually monitored and evaluated using an Outcome Mapping framework, in combination with grounded theory analysis, based on data from focus groups, observation, documentation review and semi‐structured interviews (21 patient researchers, 15 professional collaborators). RESULTS: Key stakeholders indicated the increased capacity of patients to engage in health‐care research and planning, and the introduction and acceptance of new, collaborative roles for patients in health research. The uptake of new patient roles in health‐care planning began to impact attitudes and practices. CONCLUSIONS: Patient researchers become “part of the team” through cultural and relationship changes that occur in two convergent directions: (i) building the capacity of patients to engage confidently in a dialogue with clinicians and decision makers, and (ii) increasing the readiness for patient engagement uptake within targeted organizations. John Wiley and Sons Inc. 2017-06-28 2017-12 /pmc/articles/PMC5689226/ /pubmed/28660732 http://dx.doi.org/10.1111/hex.12591 Text en © 2017 The Authors Health Expectations Published by John Wiley & Sons Ltd This is an open access article under the terms of the Creative Commons Attribution (http://creativecommons.org/licenses/by/4.0/) License, which permits use, distribution and reproduction in any medium, provided the original work is properly cited.
spellingShingle Original Research Papers
Shklarov, Svetlana
Marshall, Deborah A.
Wasylak, Tracy
Marlett, Nancy J.
“Part of the Team”: Mapping the outcomes of training patients for new roles in health research and planning
title “Part of the Team”: Mapping the outcomes of training patients for new roles in health research and planning
title_full “Part of the Team”: Mapping the outcomes of training patients for new roles in health research and planning
title_fullStr “Part of the Team”: Mapping the outcomes of training patients for new roles in health research and planning
title_full_unstemmed “Part of the Team”: Mapping the outcomes of training patients for new roles in health research and planning
title_short “Part of the Team”: Mapping the outcomes of training patients for new roles in health research and planning
title_sort “part of the team”: mapping the outcomes of training patients for new roles in health research and planning
topic Original Research Papers
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5689226/
https://www.ncbi.nlm.nih.gov/pubmed/28660732
http://dx.doi.org/10.1111/hex.12591
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