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Improving the Management of Psoriatic Arthritis and Axial Spondyloarthritis: Roundtable Discussions with Healthcare Professionals and Patients

Psoriatic arthritis (PsA) and axial spondyloarthritis (AxSpA) are both chronic, inflammatory conditions that result in a substantial burden of disease and reduced quality of life for patients. Patient involvement in developing optimal disease management strategies, including defining appropriate goa...

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Autores principales: Garrido-Cumbrera, Marco, Hillmann, Ottfrid, Mahapatra, Raj, Trigos, David, Zajc, Petra, Weiss, Luisa, Bostynets, Galya, Gossec, Laure, Coates, Laura C.
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Springer Healthcare 2017
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5696278/
https://www.ncbi.nlm.nih.gov/pubmed/28600789
http://dx.doi.org/10.1007/s40744-017-0066-2
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author Garrido-Cumbrera, Marco
Hillmann, Ottfrid
Mahapatra, Raj
Trigos, David
Zajc, Petra
Weiss, Luisa
Bostynets, Galya
Gossec, Laure
Coates, Laura C.
author_facet Garrido-Cumbrera, Marco
Hillmann, Ottfrid
Mahapatra, Raj
Trigos, David
Zajc, Petra
Weiss, Luisa
Bostynets, Galya
Gossec, Laure
Coates, Laura C.
author_sort Garrido-Cumbrera, Marco
collection PubMed
description Psoriatic arthritis (PsA) and axial spondyloarthritis (AxSpA) are both chronic, inflammatory conditions that result in a substantial burden of disease and reduced quality of life for patients. Patient involvement in developing optimal disease management strategies, including defining appropriate goals, therapies, and treatment options, as well as in setting policy priorities and agendas, is key. A working group of patient organization representatives and rheumatologists explored what patients consider to be unmet needs, important treatment gaps, and future priorities in PsA and AxSpA management. Reducing pain and fatigue, and improving physical and social functioning and work productivity were identified as important treatment goals for patients. Although the major treatment target for both PsA and AxSpA is remission, with low/minimal disease activity an alternative target for patients with established or long-standing disease, the meaning of remission from the patient’s perspective needs to be explored further as it may differ considerably from the physician’s perspective. Key recommendations from the working group to tackle unmet needs included reducing time to diagnosis, increasing patient and physician disease awareness, focusing on patients’ priorities for treatment goals, and improving patient–physician communication. By addressing these key action points moving forward, the hope is that outcomes will continue to improve for patients with PsA and AxSpA.
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spelling pubmed-56962782017-12-04 Improving the Management of Psoriatic Arthritis and Axial Spondyloarthritis: Roundtable Discussions with Healthcare Professionals and Patients Garrido-Cumbrera, Marco Hillmann, Ottfrid Mahapatra, Raj Trigos, David Zajc, Petra Weiss, Luisa Bostynets, Galya Gossec, Laure Coates, Laura C. Rheumatol Ther Review Psoriatic arthritis (PsA) and axial spondyloarthritis (AxSpA) are both chronic, inflammatory conditions that result in a substantial burden of disease and reduced quality of life for patients. Patient involvement in developing optimal disease management strategies, including defining appropriate goals, therapies, and treatment options, as well as in setting policy priorities and agendas, is key. A working group of patient organization representatives and rheumatologists explored what patients consider to be unmet needs, important treatment gaps, and future priorities in PsA and AxSpA management. Reducing pain and fatigue, and improving physical and social functioning and work productivity were identified as important treatment goals for patients. Although the major treatment target for both PsA and AxSpA is remission, with low/minimal disease activity an alternative target for patients with established or long-standing disease, the meaning of remission from the patient’s perspective needs to be explored further as it may differ considerably from the physician’s perspective. Key recommendations from the working group to tackle unmet needs included reducing time to diagnosis, increasing patient and physician disease awareness, focusing on patients’ priorities for treatment goals, and improving patient–physician communication. By addressing these key action points moving forward, the hope is that outcomes will continue to improve for patients with PsA and AxSpA. Springer Healthcare 2017-06-09 /pmc/articles/PMC5696278/ /pubmed/28600789 http://dx.doi.org/10.1007/s40744-017-0066-2 Text en © The Author(s) 2017 https://creativecommons.org/licenses/by-nc/4.0/This article is distributed under the terms of the Creative Commons Attribution-NonCommercial 4.0 International License (http://creativecommons.org/licenses/by-nc/4.0/ (https://creativecommons.org/licenses/by-nc/4.0/) ), which permits any noncommercial use, distribution, and reproduction in any medium, provided you give appropriate credit to the original author(s) and the source, provide a link to the Creative Commons license, and indicate if changes were made.
spellingShingle Review
Garrido-Cumbrera, Marco
Hillmann, Ottfrid
Mahapatra, Raj
Trigos, David
Zajc, Petra
Weiss, Luisa
Bostynets, Galya
Gossec, Laure
Coates, Laura C.
Improving the Management of Psoriatic Arthritis and Axial Spondyloarthritis: Roundtable Discussions with Healthcare Professionals and Patients
title Improving the Management of Psoriatic Arthritis and Axial Spondyloarthritis: Roundtable Discussions with Healthcare Professionals and Patients
title_full Improving the Management of Psoriatic Arthritis and Axial Spondyloarthritis: Roundtable Discussions with Healthcare Professionals and Patients
title_fullStr Improving the Management of Psoriatic Arthritis and Axial Spondyloarthritis: Roundtable Discussions with Healthcare Professionals and Patients
title_full_unstemmed Improving the Management of Psoriatic Arthritis and Axial Spondyloarthritis: Roundtable Discussions with Healthcare Professionals and Patients
title_short Improving the Management of Psoriatic Arthritis and Axial Spondyloarthritis: Roundtable Discussions with Healthcare Professionals and Patients
title_sort improving the management of psoriatic arthritis and axial spondyloarthritis: roundtable discussions with healthcare professionals and patients
topic Review
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5696278/
https://www.ncbi.nlm.nih.gov/pubmed/28600789
http://dx.doi.org/10.1007/s40744-017-0066-2
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