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Health-related Quality of Life in Children with Congenital Hydrocephalus and the Parental Concern: An Analysis in a Developing Nation

PURPOSE: To analyze quality of life of children operated for congenital hydrocephalus and the concern of parents in taking care of these children. METHODS: Thirty patients who underwent ventriculo-peritoneal shunt were randomly selected with minimum gap of 1 year between surgery and study. Canadian...

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Autores principales: Bawa, Monika, Sundaram, Jegadeesh, Dash, Vedarth, Peters, Nitin James, Rao, K. L. N.
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Medknow Publications & Media Pvt Ltd 2017
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5696663/
https://www.ncbi.nlm.nih.gov/pubmed/29204201
http://dx.doi.org/10.4103/jpn.JPN_42_17
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author Bawa, Monika
Sundaram, Jegadeesh
Dash, Vedarth
Peters, Nitin James
Rao, K. L. N.
author_facet Bawa, Monika
Sundaram, Jegadeesh
Dash, Vedarth
Peters, Nitin James
Rao, K. L. N.
author_sort Bawa, Monika
collection PubMed
description PURPOSE: To analyze quality of life of children operated for congenital hydrocephalus and the concern of parents in taking care of these children. METHODS: Thirty patients who underwent ventriculo-peritoneal shunt were randomly selected with minimum gap of 1 year between surgery and study. Canadian validated questionnaire was used. Overall health score (OHS) and parental concern score (PCS) were correlated with gender, family type and number of surgeries. RESULTS: Mean OHS was 159.43 which was summation of physical health (mean 45.76), social-emotional (mean 80.03) and cognitive health scores (mean 33.66). Mean OHS was 151.57 for males and 177.77 for females (p-value 0.233). Nuclear and joint families had mean OHS of 160.36 and 158.89 respectively (p-value 0.944). Those who underwent one surgery had mean OHS of 167.48 and PCS of 23.10 whereas mean OHS was 140.66 and PCS was 27.78 for those with multiple procedures. Mean PCS for males was 26.71 and for females was 19.33 (p-value 0.036 statistically significant). This was not statistically significant between nuclear (24.73) and joint families (24.26). CONCLUSIONS: Quality of life of survivors of hydrocephalus is reasonably good even in developing countries due to keen parental involvement irrespective of gender, family type and number of surgeries.
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spelling pubmed-56966632017-12-04 Health-related Quality of Life in Children with Congenital Hydrocephalus and the Parental Concern: An Analysis in a Developing Nation Bawa, Monika Sundaram, Jegadeesh Dash, Vedarth Peters, Nitin James Rao, K. L. N. J Pediatr Neurosci Original Article PURPOSE: To analyze quality of life of children operated for congenital hydrocephalus and the concern of parents in taking care of these children. METHODS: Thirty patients who underwent ventriculo-peritoneal shunt were randomly selected with minimum gap of 1 year between surgery and study. Canadian validated questionnaire was used. Overall health score (OHS) and parental concern score (PCS) were correlated with gender, family type and number of surgeries. RESULTS: Mean OHS was 159.43 which was summation of physical health (mean 45.76), social-emotional (mean 80.03) and cognitive health scores (mean 33.66). Mean OHS was 151.57 for males and 177.77 for females (p-value 0.233). Nuclear and joint families had mean OHS of 160.36 and 158.89 respectively (p-value 0.944). Those who underwent one surgery had mean OHS of 167.48 and PCS of 23.10 whereas mean OHS was 140.66 and PCS was 27.78 for those with multiple procedures. Mean PCS for males was 26.71 and for females was 19.33 (p-value 0.036 statistically significant). This was not statistically significant between nuclear (24.73) and joint families (24.26). CONCLUSIONS: Quality of life of survivors of hydrocephalus is reasonably good even in developing countries due to keen parental involvement irrespective of gender, family type and number of surgeries. Medknow Publications & Media Pvt Ltd 2017 /pmc/articles/PMC5696663/ /pubmed/29204201 http://dx.doi.org/10.4103/jpn.JPN_42_17 Text en Copyright: © 2017 Journal of Pediatric Neurosciences http://creativecommons.org/licenses/by-nc-sa/3.0 This is an open access article distributed under the terms of the Creative Commons Attribution-NonCommercial-ShareAlike 3.0 License, which allows others to remix, tweak, and build upon the work non-commercially, as long as the author is credited and the new creations are licensed under the identical terms.
spellingShingle Original Article
Bawa, Monika
Sundaram, Jegadeesh
Dash, Vedarth
Peters, Nitin James
Rao, K. L. N.
Health-related Quality of Life in Children with Congenital Hydrocephalus and the Parental Concern: An Analysis in a Developing Nation
title Health-related Quality of Life in Children with Congenital Hydrocephalus and the Parental Concern: An Analysis in a Developing Nation
title_full Health-related Quality of Life in Children with Congenital Hydrocephalus and the Parental Concern: An Analysis in a Developing Nation
title_fullStr Health-related Quality of Life in Children with Congenital Hydrocephalus and the Parental Concern: An Analysis in a Developing Nation
title_full_unstemmed Health-related Quality of Life in Children with Congenital Hydrocephalus and the Parental Concern: An Analysis in a Developing Nation
title_short Health-related Quality of Life in Children with Congenital Hydrocephalus and the Parental Concern: An Analysis in a Developing Nation
title_sort health-related quality of life in children with congenital hydrocephalus and the parental concern: an analysis in a developing nation
topic Original Article
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5696663/
https://www.ncbi.nlm.nih.gov/pubmed/29204201
http://dx.doi.org/10.4103/jpn.JPN_42_17
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