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Living with a rare disorder: a systematic review of the qualitative literature

BACKGROUND: Individuals with rare diseases may face challenges that are different from those experienced in more common medical conditions. A wide range of different rare conditions has resulted in a myriad of studies investigating the specificities of the diagnosis in focus. The shared psychologica...

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Detalles Bibliográficos
Autores principales:	von der Lippe, Charlotte, Diesen, Plata S., Feragen, Kristin B.
Formato:	Online Artículo Texto
Lenguaje:	English
Publicado:	John Wiley and Sons Inc. 2017
Materias:	Review Article
Acceso en línea:	https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5702559/ https://www.ncbi.nlm.nih.gov/pubmed/29178638 http://dx.doi.org/10.1002/mgg3.315

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