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Health policy and systems research: towards a better understanding and review of ethical issues

Given the focus on health systems in the post-millennium development goal era and moving towards the sustainable development goals, there is a compelling need for a common framework for health policy and systems research ethics to guide researchers and facilitate review by research ethics committees...

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Autores principales: Luyckx, Valerie Ann, Biller-Andorno, Nikola, Saxena, Abha, Tran, Nhan T
Formato: Online Artículo Texto
Lenguaje:English
Publicado: BMJ Publishing Group 2017
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5717951/
https://www.ncbi.nlm.nih.gov/pubmed/29225934
http://dx.doi.org/10.1136/bmjgh-2017-000314
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author Luyckx, Valerie Ann
Biller-Andorno, Nikola
Saxena, Abha
Tran, Nhan T
author_facet Luyckx, Valerie Ann
Biller-Andorno, Nikola
Saxena, Abha
Tran, Nhan T
author_sort Luyckx, Valerie Ann
collection PubMed
description Given the focus on health systems in the post-millennium development goal era and moving towards the sustainable development goals, there is a compelling need for a common framework for health policy and systems research ethics to guide researchers and facilitate review by research ethics committees. A consultation of global health policy and systems research and ethics experts was convened to identify ethical considerations relevant to health policy and systems research based on existing knowledge and to identify knowledge gaps through a scoping review and further expert deliberation. Health policy and systems research is highly complex and, in the absence of guidance documents, there is significant variability in ethics review. Although fundamental ethical principles pertain to both traditional clinical research and health policy and systems research, the application of these principles requires a comprehensive understanding of the nature of health policy and systems research with its distinct challenges. Such awareness must be raised among researchers and research ethics committees. Current research ethics committees lack familiarity with health policy and systems research and because health policy and systems research is conducted in real-world contexts, committees often have difficulties in determining whether a project is indeed research and/or requires ethical review. Given the strong current focus on health policy and systems research to rapidly improve health and health systems functioning globally, greater engagement and dialogue around the ethical concerns is required to optimise research review and research conduct in this rapidly evolving field.
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spelling pubmed-57179512017-12-08 Health policy and systems research: towards a better understanding and review of ethical issues Luyckx, Valerie Ann Biller-Andorno, Nikola Saxena, Abha Tran, Nhan T BMJ Glob Health Analysis Given the focus on health systems in the post-millennium development goal era and moving towards the sustainable development goals, there is a compelling need for a common framework for health policy and systems research ethics to guide researchers and facilitate review by research ethics committees. A consultation of global health policy and systems research and ethics experts was convened to identify ethical considerations relevant to health policy and systems research based on existing knowledge and to identify knowledge gaps through a scoping review and further expert deliberation. Health policy and systems research is highly complex and, in the absence of guidance documents, there is significant variability in ethics review. Although fundamental ethical principles pertain to both traditional clinical research and health policy and systems research, the application of these principles requires a comprehensive understanding of the nature of health policy and systems research with its distinct challenges. Such awareness must be raised among researchers and research ethics committees. Current research ethics committees lack familiarity with health policy and systems research and because health policy and systems research is conducted in real-world contexts, committees often have difficulties in determining whether a project is indeed research and/or requires ethical review. Given the strong current focus on health policy and systems research to rapidly improve health and health systems functioning globally, greater engagement and dialogue around the ethical concerns is required to optimise research review and research conduct in this rapidly evolving field. BMJ Publishing Group 2017-06-10 /pmc/articles/PMC5717951/ /pubmed/29225934 http://dx.doi.org/10.1136/bmjgh-2017-000314 Text en © Article author(s) (or their employer(s) unless otherwise stated in the text of the article) 2017. All rights reserved. No commercial use is permitted unless otherwise expressly granted. This is an Open Access article distributed in accordance with the Creative Commons Attribution Non Commercial (CC BY-NC 4.0) license, which permits others to distribute, remix, adapt, build upon this work non-commercially, and license their derivative works on different terms, provided the original work is properly cited and the use is non-commercial. See: http://creativecommons.org/licenses/by-nc/4.0/
spellingShingle Analysis
Luyckx, Valerie Ann
Biller-Andorno, Nikola
Saxena, Abha
Tran, Nhan T
Health policy and systems research: towards a better understanding and review of ethical issues
title Health policy and systems research: towards a better understanding and review of ethical issues
title_full Health policy and systems research: towards a better understanding and review of ethical issues
title_fullStr Health policy and systems research: towards a better understanding and review of ethical issues
title_full_unstemmed Health policy and systems research: towards a better understanding and review of ethical issues
title_short Health policy and systems research: towards a better understanding and review of ethical issues
title_sort health policy and systems research: towards a better understanding and review of ethical issues
topic Analysis
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5717951/
https://www.ncbi.nlm.nih.gov/pubmed/29225934
http://dx.doi.org/10.1136/bmjgh-2017-000314
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