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Psychometric validation of the SF-36 Health Survey in light chain amyloidosis: results from community-based and clinic-based samples
BACKGROUND: Light chain (AL) amyloidosis, a rare and life-threatening protein misfolding disorder, causes organ damage and severely impacts health-related quality of life (HRQoL). No patient-reported outcome (PRO) HRQoL measure has been validated for use in an AL amyloidosis patient population, leav...
Autores principales: | White, Michelle K, McCausland, Kristen L, Sanchorawala, Vaishali, Guthrie, Spencer D, Bayliss, Martha S |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
Dove Medical Press
2017
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5724409/ https://www.ncbi.nlm.nih.gov/pubmed/29263707 http://dx.doi.org/10.2147/PROM.S146849 |
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