Cargando…

Learning from older peoples’ reasons for participating in demanding, intensive epidemiological studies: a qualitative study

BACKGROUND: Recruitment rates of older people in epidemiological studies, although relatively higher than in clinical trials, have declined in recent years. This study aimed to explore motivating factors and concerns among older participants in an intensive epidemiological study (Hertfordshire Sarco...

Descripción completa

Detalles Bibliográficos
Autores principales: Baczynska, Alicja M., Shaw, Sarah C., Patel, Harnish P., Sayer, Avan A., Roberts, Helen C.
Formato: Online Artículo Texto
Lenguaje:English
Publicado: BioMed Central 2017
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5727983/
https://www.ncbi.nlm.nih.gov/pubmed/29233101
http://dx.doi.org/10.1186/s12874-017-0439-9
_version_ 1783285988395581440
author Baczynska, Alicja M.
Shaw, Sarah C.
Patel, Harnish P.
Sayer, Avan A.
Roberts, Helen C.
author_facet Baczynska, Alicja M.
Shaw, Sarah C.
Patel, Harnish P.
Sayer, Avan A.
Roberts, Helen C.
author_sort Baczynska, Alicja M.
collection PubMed
description BACKGROUND: Recruitment rates of older people in epidemiological studies, although relatively higher than in clinical trials, have declined in recent years. This study aimed to explore motivating factors and concerns among older participants in an intensive epidemiological study (Hertfordshire Sarcopenia Study - HSS) and identify those that could aid future recruitment to epidemiological studies and clinical trials. METHODS: Participants of the HSS fasted overnight and travelled several hours each way to the research facility at an English hospital for extensive diet/lifestyle questionnaires and investigations to assess muscle including blood tests and a muscle biopsy. We conducted semi-structured interviews with 13 participants (ten women) at the research facility in May–October 2015. The interviews were audio-taped, transcribed verbatim, coded and analysed thematically by three researchers. RESULTS: We identified personal motives for participation (potential health benefit for self and family; curiosity; comparing own fitness to others; socialising). Altruistic motives (benefit for other people; belief in importance of research) were also important. Participants voiced a number of external motives related to the study uniqueness, organisation and safety record; family support; and just ‘being asked’. Anxiety about the biopsy and travel distance were the only concerns and were alleviated by smooth and efficient running of the study. CONCLUSIONS: Personal and altruistic reasons were important motivators for these older people to participate in demanding, intensive research. They valued belonging to a birth cohort with previous research experience, but personal contact with the research team before and after consent provided reassurance, aided recruitment to HSS and could be readily replicated by other researchers. Any fears or concerns related to certain aspects of a demanding, intensive study should ideally be explored at an early visit to establish a good relationship with the research team.
format Online
Article
Text
id pubmed-5727983
institution National Center for Biotechnology Information
language English
publishDate 2017
publisher BioMed Central
record_format MEDLINE/PubMed
spelling pubmed-57279832017-12-18 Learning from older peoples’ reasons for participating in demanding, intensive epidemiological studies: a qualitative study Baczynska, Alicja M. Shaw, Sarah C. Patel, Harnish P. Sayer, Avan A. Roberts, Helen C. BMC Med Res Methodol Research Article BACKGROUND: Recruitment rates of older people in epidemiological studies, although relatively higher than in clinical trials, have declined in recent years. This study aimed to explore motivating factors and concerns among older participants in an intensive epidemiological study (Hertfordshire Sarcopenia Study - HSS) and identify those that could aid future recruitment to epidemiological studies and clinical trials. METHODS: Participants of the HSS fasted overnight and travelled several hours each way to the research facility at an English hospital for extensive diet/lifestyle questionnaires and investigations to assess muscle including blood tests and a muscle biopsy. We conducted semi-structured interviews with 13 participants (ten women) at the research facility in May–October 2015. The interviews were audio-taped, transcribed verbatim, coded and analysed thematically by three researchers. RESULTS: We identified personal motives for participation (potential health benefit for self and family; curiosity; comparing own fitness to others; socialising). Altruistic motives (benefit for other people; belief in importance of research) were also important. Participants voiced a number of external motives related to the study uniqueness, organisation and safety record; family support; and just ‘being asked’. Anxiety about the biopsy and travel distance were the only concerns and were alleviated by smooth and efficient running of the study. CONCLUSIONS: Personal and altruistic reasons were important motivators for these older people to participate in demanding, intensive research. They valued belonging to a birth cohort with previous research experience, but personal contact with the research team before and after consent provided reassurance, aided recruitment to HSS and could be readily replicated by other researchers. Any fears or concerns related to certain aspects of a demanding, intensive study should ideally be explored at an early visit to establish a good relationship with the research team. BioMed Central 2017-12-12 /pmc/articles/PMC5727983/ /pubmed/29233101 http://dx.doi.org/10.1186/s12874-017-0439-9 Text en © The Author(s). 2017 Open AccessThis article is distributed under the terms of the Creative Commons Attribution 4.0 International License (http://creativecommons.org/licenses/by/4.0/), which permits unrestricted use, distribution, and reproduction in any medium, provided you give appropriate credit to the original author(s) and the source, provide a link to the Creative Commons license, and indicate if changes were made. The Creative Commons Public Domain Dedication waiver (http://creativecommons.org/publicdomain/zero/1.0/) applies to the data made available in this article, unless otherwise stated.
spellingShingle Research Article
Baczynska, Alicja M.
Shaw, Sarah C.
Patel, Harnish P.
Sayer, Avan A.
Roberts, Helen C.
Learning from older peoples’ reasons for participating in demanding, intensive epidemiological studies: a qualitative study
title Learning from older peoples’ reasons for participating in demanding, intensive epidemiological studies: a qualitative study
title_full Learning from older peoples’ reasons for participating in demanding, intensive epidemiological studies: a qualitative study
title_fullStr Learning from older peoples’ reasons for participating in demanding, intensive epidemiological studies: a qualitative study
title_full_unstemmed Learning from older peoples’ reasons for participating in demanding, intensive epidemiological studies: a qualitative study
title_short Learning from older peoples’ reasons for participating in demanding, intensive epidemiological studies: a qualitative study
title_sort learning from older peoples’ reasons for participating in demanding, intensive epidemiological studies: a qualitative study
topic Research Article
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5727983/
https://www.ncbi.nlm.nih.gov/pubmed/29233101
http://dx.doi.org/10.1186/s12874-017-0439-9
work_keys_str_mv AT baczynskaalicjam learningfromolderpeoplesreasonsforparticipatingindemandingintensiveepidemiologicalstudiesaqualitativestudy
AT shawsarahc learningfromolderpeoplesreasonsforparticipatingindemandingintensiveepidemiologicalstudiesaqualitativestudy
AT patelharnishp learningfromolderpeoplesreasonsforparticipatingindemandingintensiveepidemiologicalstudiesaqualitativestudy
AT sayeravana learningfromolderpeoplesreasonsforparticipatingindemandingintensiveepidemiologicalstudiesaqualitativestudy
AT robertshelenc learningfromolderpeoplesreasonsforparticipatingindemandingintensiveepidemiologicalstudiesaqualitativestudy