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Validation of a health-related quality of life instrument for primary ciliary dyskinesia (QOL-PCD)

BACKGROUND: Quality of life (QOL)-primary ciliary dyskinesia (PCD) is the first disease-specific, health-related QOL instrument for PCD. Psychometric validation of QOL-PCD assesses the performance of this measure in adults, including its reliability, validity and responsiveness to change. METHODS: S...

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Detalles Bibliográficos
Autores principales:	Behan, Laura, Leigh, Margaret W, Dell, Sharon D, Dunn Galvin, Audrey, Quittner, Alexandra L, Lucas, Jane S
Formato:	Online Artículo Texto
Lenguaje:	English
Publicado:	BMJ Publishing Group 2017
Materias:	Orphan Lung Disease
Acceso en línea:	https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5738537/ https://www.ncbi.nlm.nih.gov/pubmed/28246220 http://dx.doi.org/10.1136/thoraxjnl-2016-209356

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