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Disease-specific health related quality of life patient reported outcome measures in Genodermatoses: a systematic review and critical evaluation

BACKGROUND: Health Related Quality of Life (HR-QoL) Patient reported outcome measures (PROMs) have high utility in evaluation of new interventions in genodermatoses, however inconsistent standards of development and validation have hampered widespread acceptance and adoption. OBJECTIVES: To identify...

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Detalles Bibliográficos
Autores principales:	Frew, John W., Davidson, Mark, Murrell, Dedee F.
Formato:	Online Artículo Texto
Lenguaje:	English
Publicado:	BioMed Central 2017
Materias:	Review
Acceso en línea:	https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5747090/ https://www.ncbi.nlm.nih.gov/pubmed/29284525 http://dx.doi.org/10.1186/s13023-017-0739-5

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