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008 PP: RESEARCHER-LED COLLABORATION BETWEEN PATIENTS AND CARERS, PALLIATIVE CARE AND EMERGENCY DEPARTMENT STAFF: AN EXPERIENCE-BASED CO-DESIGN PROJECT
OBJECTIVE: Increased numbers of older people with palliative care needs accessing the Emergency Department (ED) has challenged traditional care delivery processes. A doctoral Experience-based Co-design (EBCD) study sought to understand and improve palliative care experiences for older patients, thei...
Autores principales: | , , , |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
BMJ Publishing Group
2017
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5759405/ http://dx.doi.org/10.1136/bmjopen-2017-016492.26 |
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author | Wright, R Lowton, K Robert, G Grocott, P |
author_facet | Wright, R Lowton, K Robert, G Grocott, P |
author_sort | Wright, R |
collection | PubMed |
description | OBJECTIVE: Increased numbers of older people with palliative care needs accessing the Emergency Department (ED) has challenged traditional care delivery processes. A doctoral Experience-based Co-design (EBCD) study sought to understand and improve palliative care experiences for older patients, their families and staff in the ED. SETTING: An academically-based research nurse conducted the study at a large, urban ED. STUDY DESIGN: Fifteen audio-recorded interviews with ED staff and ten filmed interviews with patient and family members exploring ED experiences were analyzed thematically. Findings were validated and priorities selected for service improvements through (a) five staff workshops (64 ED staff), and (b) individual sessions with patient-family members. A subsequent co-design meeting attended by patient-family members, ED, palliative care and service improvement staff identified shared improvement priorities and planned change activities. FINDINGS: Mid-research process the researcher identified gaps in care practices and initiated conversations between the ED and palliative care staff resulting in: 1) re-design of the referral processes, 2) implementation of mandatory annual training for ED staff, and 3) initiation of routine communication between ED and palliative care teams. The co-design meeting led to 1) routine provision of information about the ED for patients, and 2) on-going interdisciplinary collaborations to improve palliative care based on patient-family recommendations. An objective, external researcher was helpful when misunderstandings were evident between disciplines. CONCLUSION: EBCD provided a flexible framework for researcher-led, clinically-based collaborative research within a complex environment with vulnerable patients. ‘Co-design’ processes facilitated ownership and engagement with the research by ED staff and patient-family participants, additionally enabling inclusion of palliative care staff. |
format | Online Article Text |
id | pubmed-5759405 |
institution | National Center for Biotechnology Information |
language | English |
publishDate | 2017 |
publisher | BMJ Publishing Group |
record_format | MEDLINE/PubMed |
spelling | pubmed-57594052018-01-12 008 PP: RESEARCHER-LED COLLABORATION BETWEEN PATIENTS AND CARERS, PALLIATIVE CARE AND EMERGENCY DEPARTMENT STAFF: AN EXPERIENCE-BASED CO-DESIGN PROJECT Wright, R Lowton, K Robert, G Grocott, P BMJ Open UCL QUALITATIVE HEALTH RESEARCH SYMPOSIUM 2017 OBJECTIVE: Increased numbers of older people with palliative care needs accessing the Emergency Department (ED) has challenged traditional care delivery processes. A doctoral Experience-based Co-design (EBCD) study sought to understand and improve palliative care experiences for older patients, their families and staff in the ED. SETTING: An academically-based research nurse conducted the study at a large, urban ED. STUDY DESIGN: Fifteen audio-recorded interviews with ED staff and ten filmed interviews with patient and family members exploring ED experiences were analyzed thematically. Findings were validated and priorities selected for service improvements through (a) five staff workshops (64 ED staff), and (b) individual sessions with patient-family members. A subsequent co-design meeting attended by patient-family members, ED, palliative care and service improvement staff identified shared improvement priorities and planned change activities. FINDINGS: Mid-research process the researcher identified gaps in care practices and initiated conversations between the ED and palliative care staff resulting in: 1) re-design of the referral processes, 2) implementation of mandatory annual training for ED staff, and 3) initiation of routine communication between ED and palliative care teams. The co-design meeting led to 1) routine provision of information about the ED for patients, and 2) on-going interdisciplinary collaborations to improve palliative care based on patient-family recommendations. An objective, external researcher was helpful when misunderstandings were evident between disciplines. CONCLUSION: EBCD provided a flexible framework for researcher-led, clinically-based collaborative research within a complex environment with vulnerable patients. ‘Co-design’ processes facilitated ownership and engagement with the research by ED staff and patient-family participants, additionally enabling inclusion of palliative care staff. BMJ Publishing Group 2017-03-02 /pmc/articles/PMC5759405/ http://dx.doi.org/10.1136/bmjopen-2017-016492.26 Text en Published by the BMJ Publishing Group Limited. For permission to use (where not already granted under a licence) please go to http://www.bmj.com/company/products-services/rights-and-licensing/ This is an Open Access article distributed in accordance with the Creative Commons Attribution Non Commercial (CC BY-NC 4.0) license, which permits others to distribute, remix, adapt, build upon this work non-commercially, and license their derivative works on different terms, provided the original work is properly cited and the use is non-commercial. See: http://creativecommons.org/licenses/by-nc/4.0/ |
spellingShingle | UCL QUALITATIVE HEALTH RESEARCH SYMPOSIUM 2017 Wright, R Lowton, K Robert, G Grocott, P 008 PP: RESEARCHER-LED COLLABORATION BETWEEN PATIENTS AND CARERS, PALLIATIVE CARE AND EMERGENCY DEPARTMENT STAFF: AN EXPERIENCE-BASED CO-DESIGN PROJECT |
title | 008 PP: RESEARCHER-LED COLLABORATION BETWEEN PATIENTS AND CARERS, PALLIATIVE CARE AND EMERGENCY DEPARTMENT STAFF: AN EXPERIENCE-BASED CO-DESIGN PROJECT |
title_full | 008 PP: RESEARCHER-LED COLLABORATION BETWEEN PATIENTS AND CARERS, PALLIATIVE CARE AND EMERGENCY DEPARTMENT STAFF: AN EXPERIENCE-BASED CO-DESIGN PROJECT |
title_fullStr | 008 PP: RESEARCHER-LED COLLABORATION BETWEEN PATIENTS AND CARERS, PALLIATIVE CARE AND EMERGENCY DEPARTMENT STAFF: AN EXPERIENCE-BASED CO-DESIGN PROJECT |
title_full_unstemmed | 008 PP: RESEARCHER-LED COLLABORATION BETWEEN PATIENTS AND CARERS, PALLIATIVE CARE AND EMERGENCY DEPARTMENT STAFF: AN EXPERIENCE-BASED CO-DESIGN PROJECT |
title_short | 008 PP: RESEARCHER-LED COLLABORATION BETWEEN PATIENTS AND CARERS, PALLIATIVE CARE AND EMERGENCY DEPARTMENT STAFF: AN EXPERIENCE-BASED CO-DESIGN PROJECT |
title_sort | 008 pp: researcher-led collaboration between patients and carers, palliative care and emergency department staff: an experience-based co-design project |
topic | UCL QUALITATIVE HEALTH RESEARCH SYMPOSIUM 2017 |
url | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5759405/ http://dx.doi.org/10.1136/bmjopen-2017-016492.26 |
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