Patient‐identified impact of symptoms in spinal and bulbar muscular atrophy

Introduction: The effects of spinal bulbar muscular atrophy (SBMA) on quality of life (QoL) are not well understood. This study describes symptoms from the patient's perspective and the impact these symptoms have on QoL. Methods: We conducted open‐ended interviews with 21 adult men with genetic...

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Detalles Bibliográficos
Autores principales: Guber, Robert D., Kokkinis, Angela D., Schindler, Alice B., Bendixen, Roxanna M., Heatwole, Chad R., Fischbeck, Kenneth H., Grunseich, Christopher
Formato: Online Artículo Texto
Lenguaje:English
Publicado: John Wiley and Sons Inc. 2017
Materias:
Clinical Research
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5763365/
https://www.ncbi.nlm.nih.gov/pubmed/28877556
http://dx.doi.org/10.1002/mus.25957

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