Cargando…

Does benefit justify research with children?

The inclusion of children in research gives rise to a difficult ethical question: What justifies children's research participation and exposure to research risks when they cannot provide informed consent? This question arises out of the tension between the moral requirement to obtain a subject&...

Descripción completa

Detalles Bibliográficos
Autor principal: Binik, Ariella
Formato: Online Artículo Texto
Lenguaje:English
Publicado: John Wiley and Sons Inc. 2017
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5763384/
https://www.ncbi.nlm.nih.gov/pubmed/28885727
http://dx.doi.org/10.1111/bioe.12385
_version_ 1783291875907600384
author Binik, Ariella
author_facet Binik, Ariella
author_sort Binik, Ariella
collection PubMed
description The inclusion of children in research gives rise to a difficult ethical question: What justifies children's research participation and exposure to research risks when they cannot provide informed consent? This question arises out of the tension between the moral requirement to obtain a subject's informed consent for research participation, on the one hand, and the limited capacity of most children to provide informed consent, on the other. Most agree that children's participation in clinical research can be justified. But the ethical justification for exposing children to research risks in the absence of consent remains unclear. One prevalent group of arguments aims to justify children's risk exposure by appealing to the concept of benefit. I call these ‘benefit arguments’. Prominent versions of this argument defend the idea that broadening our understanding of the notion of benefit to include non‐medical benefits (such as the benefit of a moral education) helps to justify children's research participation. I argue that existing benefit arguments are not persuasive and raise problems with the strategy of appealing to broader notions of benefit to justify children's exposure to research risk.
format Online
Article
Text
id pubmed-5763384
institution National Center for Biotechnology Information
language English
publishDate 2017
publisher John Wiley and Sons Inc.
record_format MEDLINE/PubMed
spelling pubmed-57633842018-01-17 Does benefit justify research with children? Binik, Ariella Bioethics Original Articles The inclusion of children in research gives rise to a difficult ethical question: What justifies children's research participation and exposure to research risks when they cannot provide informed consent? This question arises out of the tension between the moral requirement to obtain a subject's informed consent for research participation, on the one hand, and the limited capacity of most children to provide informed consent, on the other. Most agree that children's participation in clinical research can be justified. But the ethical justification for exposing children to research risks in the absence of consent remains unclear. One prevalent group of arguments aims to justify children's risk exposure by appealing to the concept of benefit. I call these ‘benefit arguments’. Prominent versions of this argument defend the idea that broadening our understanding of the notion of benefit to include non‐medical benefits (such as the benefit of a moral education) helps to justify children's research participation. I argue that existing benefit arguments are not persuasive and raise problems with the strategy of appealing to broader notions of benefit to justify children's exposure to research risk. John Wiley and Sons Inc. 2017-09-08 2018-01 /pmc/articles/PMC5763384/ /pubmed/28885727 http://dx.doi.org/10.1111/bioe.12385 Text en © 2017 The Authors. Bioethics Published by John Wiley & Sons Ltd This is an open access article under the terms of the Creative Commons Attribution (http://creativecommons.org/licenses/by/4.0/) License, which permits use, distribution and reproduction in any medium, provided the original work is properly cited.
spellingShingle Original Articles
Binik, Ariella
Does benefit justify research with children?
title Does benefit justify research with children?
title_full Does benefit justify research with children?
title_fullStr Does benefit justify research with children?
title_full_unstemmed Does benefit justify research with children?
title_short Does benefit justify research with children?
title_sort does benefit justify research with children?
topic Original Articles
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5763384/
https://www.ncbi.nlm.nih.gov/pubmed/28885727
http://dx.doi.org/10.1111/bioe.12385
work_keys_str_mv AT binikariella doesbenefitjustifyresearchwithchildren