Cargando…
Does benefit justify research with children?
The inclusion of children in research gives rise to a difficult ethical question: What justifies children's research participation and exposure to research risks when they cannot provide informed consent? This question arises out of the tension between the moral requirement to obtain a subject&...
Autor principal: | |
---|---|
Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
John Wiley and Sons Inc.
2017
|
Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5763384/ https://www.ncbi.nlm.nih.gov/pubmed/28885727 http://dx.doi.org/10.1111/bioe.12385 |
_version_ | 1783291875907600384 |
---|---|
author | Binik, Ariella |
author_facet | Binik, Ariella |
author_sort | Binik, Ariella |
collection | PubMed |
description | The inclusion of children in research gives rise to a difficult ethical question: What justifies children's research participation and exposure to research risks when they cannot provide informed consent? This question arises out of the tension between the moral requirement to obtain a subject's informed consent for research participation, on the one hand, and the limited capacity of most children to provide informed consent, on the other. Most agree that children's participation in clinical research can be justified. But the ethical justification for exposing children to research risks in the absence of consent remains unclear. One prevalent group of arguments aims to justify children's risk exposure by appealing to the concept of benefit. I call these ‘benefit arguments’. Prominent versions of this argument defend the idea that broadening our understanding of the notion of benefit to include non‐medical benefits (such as the benefit of a moral education) helps to justify children's research participation. I argue that existing benefit arguments are not persuasive and raise problems with the strategy of appealing to broader notions of benefit to justify children's exposure to research risk. |
format | Online Article Text |
id | pubmed-5763384 |
institution | National Center for Biotechnology Information |
language | English |
publishDate | 2017 |
publisher | John Wiley and Sons Inc. |
record_format | MEDLINE/PubMed |
spelling | pubmed-57633842018-01-17 Does benefit justify research with children? Binik, Ariella Bioethics Original Articles The inclusion of children in research gives rise to a difficult ethical question: What justifies children's research participation and exposure to research risks when they cannot provide informed consent? This question arises out of the tension between the moral requirement to obtain a subject's informed consent for research participation, on the one hand, and the limited capacity of most children to provide informed consent, on the other. Most agree that children's participation in clinical research can be justified. But the ethical justification for exposing children to research risks in the absence of consent remains unclear. One prevalent group of arguments aims to justify children's risk exposure by appealing to the concept of benefit. I call these ‘benefit arguments’. Prominent versions of this argument defend the idea that broadening our understanding of the notion of benefit to include non‐medical benefits (such as the benefit of a moral education) helps to justify children's research participation. I argue that existing benefit arguments are not persuasive and raise problems with the strategy of appealing to broader notions of benefit to justify children's exposure to research risk. John Wiley and Sons Inc. 2017-09-08 2018-01 /pmc/articles/PMC5763384/ /pubmed/28885727 http://dx.doi.org/10.1111/bioe.12385 Text en © 2017 The Authors. Bioethics Published by John Wiley & Sons Ltd This is an open access article under the terms of the Creative Commons Attribution (http://creativecommons.org/licenses/by/4.0/) License, which permits use, distribution and reproduction in any medium, provided the original work is properly cited. |
spellingShingle | Original Articles Binik, Ariella Does benefit justify research with children? |
title | Does benefit justify research with children? |
title_full | Does benefit justify research with children? |
title_fullStr | Does benefit justify research with children? |
title_full_unstemmed | Does benefit justify research with children? |
title_short | Does benefit justify research with children? |
title_sort | does benefit justify research with children? |
topic | Original Articles |
url | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5763384/ https://www.ncbi.nlm.nih.gov/pubmed/28885727 http://dx.doi.org/10.1111/bioe.12385 |
work_keys_str_mv | AT binikariella doesbenefitjustifyresearchwithchildren |