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Health condition and familial factors associated with health-related quality of life in adolescents with congenital heart disease: a cross sectional study
BACKGROUND: The focus of clinical care after the repair of congenital heart disease has shifted from saving life of the patient to the patient’s quality of life. The purpose of this study was to examine the health condition and familial factors associated with the health related quality of life of a...
Autores principales: | , , |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
BioMed Central
2018
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5763546/ https://www.ncbi.nlm.nih.gov/pubmed/29321028 http://dx.doi.org/10.1186/s12955-018-0841-y |
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author | Im, Yu-Mi Yun, Tae-Jin Lee, Sunhee |
author_facet | Im, Yu-Mi Yun, Tae-Jin Lee, Sunhee |
author_sort | Im, Yu-Mi |
collection | PubMed |
description | BACKGROUND: The focus of clinical care after the repair of congenital heart disease has shifted from saving life of the patient to the patient’s quality of life. The purpose of this study was to examine the health condition and familial factors associated with the health related quality of life of adolescents with congenital heart disease. METHODS: Ninety-eight adolescents aged 13–19 years were collected from a congenital heart clinic from July 22 to August 23, 2013. Perceptions of parental rearing behaviors, health related quality of life of adolescent with congenital heart disease, and general characteristics were measured. We used multiple linear regression analysis to explore factors that are associated with the health related quality of life of adolescents with congenital heart disease. RESULTS: New York heart association class (Adj R(2) = .186, p = .000), presence of siblings (Adj R(2) = .240, p = .010), and mother’s emotional warmth (Adj R(2) = .265, p = .043) were significantly associated with the health related quality of life of adolescents with congenital heart disease. CONCLUSIONS: Emotionally warm parental rearing behaviors and the presence of siblings were important familial factors that were positively associated with HRQOL in adolescents with CHD. Therefore, it is important for healthcare providers to develop a greater sensitivity to, and awareness of, the familial influences that may be impacting a subject’s HRQOL, as well as the exigencies of the CHD, itself. |
format | Online Article Text |
id | pubmed-5763546 |
institution | National Center for Biotechnology Information |
language | English |
publishDate | 2018 |
publisher | BioMed Central |
record_format | MEDLINE/PubMed |
spelling | pubmed-57635462018-01-17 Health condition and familial factors associated with health-related quality of life in adolescents with congenital heart disease: a cross sectional study Im, Yu-Mi Yun, Tae-Jin Lee, Sunhee Health Qual Life Outcomes Research BACKGROUND: The focus of clinical care after the repair of congenital heart disease has shifted from saving life of the patient to the patient’s quality of life. The purpose of this study was to examine the health condition and familial factors associated with the health related quality of life of adolescents with congenital heart disease. METHODS: Ninety-eight adolescents aged 13–19 years were collected from a congenital heart clinic from July 22 to August 23, 2013. Perceptions of parental rearing behaviors, health related quality of life of adolescent with congenital heart disease, and general characteristics were measured. We used multiple linear regression analysis to explore factors that are associated with the health related quality of life of adolescents with congenital heart disease. RESULTS: New York heart association class (Adj R(2) = .186, p = .000), presence of siblings (Adj R(2) = .240, p = .010), and mother’s emotional warmth (Adj R(2) = .265, p = .043) were significantly associated with the health related quality of life of adolescents with congenital heart disease. CONCLUSIONS: Emotionally warm parental rearing behaviors and the presence of siblings were important familial factors that were positively associated with HRQOL in adolescents with CHD. Therefore, it is important for healthcare providers to develop a greater sensitivity to, and awareness of, the familial influences that may be impacting a subject’s HRQOL, as well as the exigencies of the CHD, itself. BioMed Central 2018-01-10 /pmc/articles/PMC5763546/ /pubmed/29321028 http://dx.doi.org/10.1186/s12955-018-0841-y Text en © The Author(s). 2018 Open AccessThis article is distributed under the terms of the Creative Commons Attribution 4.0 International License (http://creativecommons.org/licenses/by/4.0/), which permits unrestricted use, distribution, and reproduction in any medium, provided you give appropriate credit to the original author(s) and the source, provide a link to the Creative Commons license, and indicate if changes were made. The Creative Commons Public Domain Dedication waiver (http://creativecommons.org/publicdomain/zero/1.0/) applies to the data made available in this article, unless otherwise stated. |
spellingShingle | Research Im, Yu-Mi Yun, Tae-Jin Lee, Sunhee Health condition and familial factors associated with health-related quality of life in adolescents with congenital heart disease: a cross sectional study |
title | Health condition and familial factors associated with health-related quality of life in adolescents with congenital heart disease: a cross sectional study |
title_full | Health condition and familial factors associated with health-related quality of life in adolescents with congenital heart disease: a cross sectional study |
title_fullStr | Health condition and familial factors associated with health-related quality of life in adolescents with congenital heart disease: a cross sectional study |
title_full_unstemmed | Health condition and familial factors associated with health-related quality of life in adolescents with congenital heart disease: a cross sectional study |
title_short | Health condition and familial factors associated with health-related quality of life in adolescents with congenital heart disease: a cross sectional study |
title_sort | health condition and familial factors associated with health-related quality of life in adolescents with congenital heart disease: a cross sectional study |
topic | Research |
url | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5763546/ https://www.ncbi.nlm.nih.gov/pubmed/29321028 http://dx.doi.org/10.1186/s12955-018-0841-y |
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