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A qualitative exploration of the experiences of living with and being treated for fibromyalgia
This study explores the life and treatment experience of people in the United Kingdom with fibromyalgia in order to inform the development of treatments which are both effective and acceptable to users. Qualitative interviews were conducted with 14 participants with interpretative phenomenological a...
Autores principales: | , , , , |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
SAGE Publications
2017
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5779932/ https://www.ncbi.nlm.nih.gov/pubmed/29379616 http://dx.doi.org/10.1177/2055102917724336 |
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author | Ashe, Simon C Furness, Penny J Taylor, Sophie J Haywood-Small, Sarah Lawson, Kim |
author_facet | Ashe, Simon C Furness, Penny J Taylor, Sophie J Haywood-Small, Sarah Lawson, Kim |
author_sort | Ashe, Simon C |
collection | PubMed |
description | This study explores the life and treatment experience of people in the United Kingdom with fibromyalgia in order to inform the development of treatments which are both effective and acceptable to users. Qualitative interviews were conducted with 14 participants with interpretative phenomenological analysis used as the theoretical framework and analytical method. The themes identified were as follows: Inauthenticity of fibromyalgia, An Unconventional healthcare experience, Re-creating support networks, Challenging the working identity, Threatening the family dynamic and Fighting, accepting or accommodating? The biopsychosocial impacts of fibromyalgia disrupted the identity, lifestyle, roles and relationships of our participants with such challenges further exacerbated by the contested nature of the illness. |
format | Online Article Text |
id | pubmed-5779932 |
institution | National Center for Biotechnology Information |
language | English |
publishDate | 2017 |
publisher | SAGE Publications |
record_format | MEDLINE/PubMed |
spelling | pubmed-57799322018-01-29 A qualitative exploration of the experiences of living with and being treated for fibromyalgia Ashe, Simon C Furness, Penny J Taylor, Sophie J Haywood-Small, Sarah Lawson, Kim Health Psychol Open Report of Empirical Study This study explores the life and treatment experience of people in the United Kingdom with fibromyalgia in order to inform the development of treatments which are both effective and acceptable to users. Qualitative interviews were conducted with 14 participants with interpretative phenomenological analysis used as the theoretical framework and analytical method. The themes identified were as follows: Inauthenticity of fibromyalgia, An Unconventional healthcare experience, Re-creating support networks, Challenging the working identity, Threatening the family dynamic and Fighting, accepting or accommodating? The biopsychosocial impacts of fibromyalgia disrupted the identity, lifestyle, roles and relationships of our participants with such challenges further exacerbated by the contested nature of the illness. SAGE Publications 2017-09-07 /pmc/articles/PMC5779932/ /pubmed/29379616 http://dx.doi.org/10.1177/2055102917724336 Text en © The Author(s) 2017 http://creativecommons.org/licenses/by-nc/4.0/ This article is distributed under the terms of the Creative Commons Attribution-NonCommercial 4.0 License (http://www.creativecommons.org/licenses/by-nc/4.0/) which permits non-commercial use, reproduction and distribution of the work without further permission provided the original work is attributed as specified on the SAGE and Open Access page (http://www.uk.sagepub.com/aboutus/openaccess.htm). |
spellingShingle | Report of Empirical Study Ashe, Simon C Furness, Penny J Taylor, Sophie J Haywood-Small, Sarah Lawson, Kim A qualitative exploration of the experiences of living with and being treated for fibromyalgia |
title | A qualitative exploration of the experiences of living with and being treated for fibromyalgia |
title_full | A qualitative exploration of the experiences of living with and being treated for fibromyalgia |
title_fullStr | A qualitative exploration of the experiences of living with and being treated for fibromyalgia |
title_full_unstemmed | A qualitative exploration of the experiences of living with and being treated for fibromyalgia |
title_short | A qualitative exploration of the experiences of living with and being treated for fibromyalgia |
title_sort | qualitative exploration of the experiences of living with and being treated for fibromyalgia |
topic | Report of Empirical Study |
url | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5779932/ https://www.ncbi.nlm.nih.gov/pubmed/29379616 http://dx.doi.org/10.1177/2055102917724336 |
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