Učitavanje…

Caregiver burden in amyotrophic lateral sclerosis: A systematic review

BACKGROUND: Informal caregivers of patients with amyotrophic lateral sclerosis experience increased levels of caregiver burden as the disease progresses. Insight in the factors related to caregiver burden is needed in order to develop supportive interventions. AIM: To evaluate the evidence on patien...

Bibliografski detalji
Glavni autori:	de Wit, Jessica, Bakker, Leonhard A, van Groenestijn, Annerieke C, van den Berg, Leonard H, Schröder, Carin D, Visser-Meily, Johanna MA, Beelen, Anita
Format:	Online Članak Tekst
Jezik:	English
Izdano:	SAGE Publications 2017
Teme:	Family Carers
Online pristup:	https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5784458/ https://www.ncbi.nlm.nih.gov/pubmed/28671483 http://dx.doi.org/10.1177/0269216317709965

Slična djela

A blended psychosocial support program for partners of patients with amyotrophic lateral sclerosis and progressive muscular atrophy: protocol of a randomized controlled trial
od: de Wit, Jessica, i dr.
Izdano: (2018)

User perspectives on a psychosocial blended support program for partners of patients with amyotrophic lateral sclerosis and progressive muscular atrophy: a qualitative study
od: de Wit, Jessica, i dr.
Izdano: (2019)

Associations between psychological factors and health-related quality of life and global quality of life in patients with ALS: a systematic review
od: van Groenestijn, Annerieke C., i dr.
Izdano: (2016)

Control in the absence of choice: A qualitative study on decision-making about gastrostomy in people with amyotrophic lateral sclerosis, caregivers, and healthcare professionals
od: van Eenennaam, Remko M., i dr.
Izdano: (2023)

Burden and benefit—A mixed methods study of informal Amyotrophic Lateral Sclerosis caregivers in Ireland and the Netherlands
od: Kennedy, Polly, i dr.
Izdano: (2022)

Development of a Rasch-Built Amyotrophic Lateral Sclerosis Impairment Multidomain Scale to Measure Disease Progression in ALS
od: de Jongh, Adriaan D., i dr.
Izdano: (2023)

Parental and child adjustment to amyotrophic lateral sclerosis: transformations, struggles and needs
od: Sommers-Spijkerman, Marion, i dr.
Izdano: (2022)

Discussing personalized prognosis in amyotrophic lateral sclerosis: development of a communication guide
od: van Eenennaam, Remko M., i dr.
Izdano: (2020)

Informal Caregivers in Amyotrophic Lateral Sclerosis: A Multi-Centre, Exploratory Study of Burden and Difficulties
od: Conroy, Éilís, i dr.
Izdano: (2021)

Effects of aerobic exercise therapy and cognitive behavioural therapy on functioning and quality of life in amyotrophic lateral sclerosis: protocol of the FACTS-2-ALS trial
od: van Groenestijn, Annerieke C, i dr.
Izdano: (2011)

Discussing Personalized Prognosis Empowers Patients with Amyotrophic Lateral Sclerosis to Regain Control over Their Future: A Qualitative Study
od: van Eenennaam, Remko M., i dr.
Izdano: (2021)

Using patient-reported symptoms of dyspnea for screening reduced respiratory function in patients with motor neuron diseases
od: Helleman, Jochem, i dr.
Izdano: (2020)

Assessment of the factorial validity and reliability of the ALSFRS-R: a revision of its measurement model
od: Bakker, Leonhard A., i dr.
Izdano: (2017)

Implementation and evaluation of an e-health innovation for personalized care for patients with amyotrophic lateral sclerosis (ALS): protocol for a participatory action research study
od: Dontje, M. L., i dr.
Izdano: (2021)

The Distinct Traits of the UNC13A Polymorphism in Amyotrophic Lateral Sclerosis
od: Tan, Harold H. G., i dr.
Izdano: (2020)

Pattern of muscle strength improvement after intravenous immunoglobulin therapy in multifocal motor neuropathy
od: Bakers, Jaap N.E., i dr.
Izdano: (2021)

Informal Caregiving in Amyotrophic Lateral Sclerosis (ALS): A High Caregiver Burden and Drastic Consequences on Caregivers’ Lives
od: Schischlevskij, Pavel, i dr.
Izdano: (2021)

Home-monitoring of vital capacity in people with a motor neuron disease
od: Helleman, Jochem, i dr.
Izdano: (2022)

Multimodal longitudinal study of structural brain involvement in amyotrophic lateral sclerosis
od: van der Burgh, Hannelore K., i dr.
Izdano: (2020)

No association between gluten sensitivity and amyotrophic lateral sclerosis
od: Visser, Anne E., i dr.
Izdano: (2017)

Protein aggregation in amyotrophic lateral sclerosis
od: Blokhuis, Anna M., i dr.
Izdano: (2013)

Amyotrophic lateral sclerosis patients' quality of life and their caregiver burden during COVID-19 pandemic
od: Bombaci, Alessandro, i dr.
Izdano: (2021)

Impaired Structural Motor Connectome in Amyotrophic Lateral Sclerosis
od: Verstraete, Esther, i dr.
Izdano: (2011)

Progression of cognitive and behavioural impairment in early amyotrophic lateral sclerosis
od: Beeldman, Emma, i dr.
Izdano: (2020)

Quality of Life in Amyotrophic Lateral Sclerosis Patients and Care Burden of Caregivers in Sardinia during COVID-19 Pandemic
od: Gentili, Davide, i dr.
Izdano: (2023)

Portable fixed dynamometry: towards remote muscle strength measurements in patients with motor neuron disease
od: Bakers, Jaap N. E., i dr.
Izdano: (2020)

Do knowledge brokers facilitate implementation of the stroke guideline in clinical practice?
od: Willems, Mia, i dr.
Izdano: (2013)

Connectome‐Based Propagation Model in Amyotrophic Lateral Sclerosis
od: Meier, Jil M., i dr.
Izdano: (2020)

Refining eligibility criteria for amyotrophic lateral sclerosis clinical trials
od: van Eijk, Ruben P.A., i dr.
Izdano: (2019)

Correlation between structural and functional connectivity impairment in amyotrophic lateral sclerosis
od: Schmidt, Ruben, i dr.
Izdano: (2014)

Deep learning predictions of survival based on MRI in amyotrophic lateral sclerosis
od: van der Burgh, Hannelore K., i dr.
Izdano: (2016)

Assessment of Burden and Stress Among Caregivers of Terminally Ill Patients in a Saudi University Hospital: A Cross-Sectional Study
od: Ghazwani, Eisa Y, i dr.
Izdano: (2021)

Comparing methods to combine functional loss and mortality in clinical trials for amyotrophic lateral sclerosis
od: van Eijk, Ruben PA, i dr.
Izdano: (2018)

Caregiving fathers and the negotiation of crossroads: Journeys of continuity and change
od: Hodkinson, Paul, i dr.
Izdano: (2022)

Genetic correlation between amyotrophic lateral sclerosis and schizophrenia
od: McLaughlin, Russell L., i dr.
Izdano: (2017)

Needs of informal caregivers across the caregiving course in amyotrophic lateral sclerosis: a qualitative analysis
od: Galvin, Miriam, i dr.
Izdano: (2018)

Death Anxiety and Depression in Amyotrophic Lateral Sclerosis Patients and Their Primary Caregivers
od: Grabler, Marvin R., i dr.
Izdano: (2018)

Family Caregiver Suffering in Caring for Patients with Amyotrophic Lateral Sclerosis in Korea
od: Oh, Juyeon, i dr.
Izdano: (2021)

Caregiver burden in amyotrophic lateral sclerosis is more dependent on patients’ behavioral changes than physical disability: a comparative study
od: Lillo, Patricia, i dr.
Izdano: (2012)

Long-Term Air Pollution Exposure and Amyotrophic Lateral Sclerosis in Netherlands: A Population-based Case–control Study
od: Seelen, Meinie, i dr.
Izdano: (2017)

Cannot write session to /tmp/vufind_sessions/sess_abi483sbhqd24i5mut9tn8bhpp