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A data infrastructure for the assessment of health care performance: lessons from the BRIDGE-health project

The integration of different administrative data sources from a number of European countries has been shown useful in the assessment of unwarranted variations in health care performance. This essay describes the procedures used to set up a data infrastructure (e.g., data access and exchange, definit...

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Autores principales: Bernal-Delgado, Enrique, Estupiñán-Romero, Francisco
Formato: Online Artículo Texto
Lenguaje:English
Publicado: BioMed Central 2018
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5784587/
https://www.ncbi.nlm.nih.gov/pubmed/29416858
http://dx.doi.org/10.1186/s13690-017-0245-1
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author Bernal-Delgado, Enrique
Estupiñán-Romero, Francisco
author_facet Bernal-Delgado, Enrique
Estupiñán-Romero, Francisco
author_sort Bernal-Delgado, Enrique
collection PubMed
description The integration of different administrative data sources from a number of European countries has been shown useful in the assessment of unwarranted variations in health care performance. This essay describes the procedures used to set up a data infrastructure (e.g., data access and exchange, definition of the minimum common wealth of data required, and the development of the relational logic data model) and, the methods to produce trustworthy healthcare performance measurements (e.g., ontologies standardisation and quality assurance analysis). The paper ends providing some hints on how to use these lessons in an eventual European infrastructure on public health research and monitoring. Although the relational data infrastructure developed has been proven accurate, effective to compare health system performance across different countries, and efficient enough to deal with hundred of millions of episodes, the logic data model might not be responsive if the European infrastructure aims at including electronic health records and carrying out multi-cohort multi-intervention comparative effectiveness research. The deployment of a distributed infrastructure based on semantic interoperability, where individual data remain in-country and open-access scripts for data management and analysis travel around the hubs composing the infrastructure, might be a sensible way forward. ELECTRONIC SUPPLEMENTARY MATERIAL: The online version of this article (10.1186/s13690-017-0245-1) contains supplementary material, which is available to authorized users.
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spelling pubmed-57845872018-02-07 A data infrastructure for the assessment of health care performance: lessons from the BRIDGE-health project Bernal-Delgado, Enrique Estupiñán-Romero, Francisco Arch Public Health Research The integration of different administrative data sources from a number of European countries has been shown useful in the assessment of unwarranted variations in health care performance. This essay describes the procedures used to set up a data infrastructure (e.g., data access and exchange, definition of the minimum common wealth of data required, and the development of the relational logic data model) and, the methods to produce trustworthy healthcare performance measurements (e.g., ontologies standardisation and quality assurance analysis). The paper ends providing some hints on how to use these lessons in an eventual European infrastructure on public health research and monitoring. Although the relational data infrastructure developed has been proven accurate, effective to compare health system performance across different countries, and efficient enough to deal with hundred of millions of episodes, the logic data model might not be responsive if the European infrastructure aims at including electronic health records and carrying out multi-cohort multi-intervention comparative effectiveness research. The deployment of a distributed infrastructure based on semantic interoperability, where individual data remain in-country and open-access scripts for data management and analysis travel around the hubs composing the infrastructure, might be a sensible way forward. ELECTRONIC SUPPLEMENTARY MATERIAL: The online version of this article (10.1186/s13690-017-0245-1) contains supplementary material, which is available to authorized users. BioMed Central 2018-01-24 /pmc/articles/PMC5784587/ /pubmed/29416858 http://dx.doi.org/10.1186/s13690-017-0245-1 Text en © The Author(s). 2018 Open AccessThis article is distributed under the terms of the Creative Commons Attribution 4.0 International License (http://creativecommons.org/licenses/by/4.0/), which permits unrestricted use, distribution, and reproduction in any medium, provided you give appropriate credit to the original author(s) and the source, provide a link to the Creative Commons license, and indicate if changes were made. The Creative Commons Public Domain Dedication waiver (http://creativecommons.org/publicdomain/zero/1.0/) applies to the data made available in this article, unless otherwise stated.
spellingShingle Research
Bernal-Delgado, Enrique
Estupiñán-Romero, Francisco
A data infrastructure for the assessment of health care performance: lessons from the BRIDGE-health project
title A data infrastructure for the assessment of health care performance: lessons from the BRIDGE-health project
title_full A data infrastructure for the assessment of health care performance: lessons from the BRIDGE-health project
title_fullStr A data infrastructure for the assessment of health care performance: lessons from the BRIDGE-health project
title_full_unstemmed A data infrastructure for the assessment of health care performance: lessons from the BRIDGE-health project
title_short A data infrastructure for the assessment of health care performance: lessons from the BRIDGE-health project
title_sort data infrastructure for the assessment of health care performance: lessons from the bridge-health project
topic Research
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5784587/
https://www.ncbi.nlm.nih.gov/pubmed/29416858
http://dx.doi.org/10.1186/s13690-017-0245-1
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