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Impairment Experiences, Identity and Attitudes Towards Genetic Screening: the Views of People with Spinal Muscular Atrophy
Developments in genetics are rapidly changing the capacity and scope of screening practices. However, people with genetic conditions have been under-represented in the literature exploring their implications. This mixed methods study explores the attitudes of people with Spinal Muscular Atrophy (SMA...
Autores principales: | Boardman, Felicity K., Young, Philip J., Griffiths, Frances E. |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
Springer US
2017
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5794814/ https://www.ncbi.nlm.nih.gov/pubmed/28664217 http://dx.doi.org/10.1007/s10897-017-0122-7 |
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