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Exploring Positive Survivorship Experiences of Indigenous Australian Cancer Patients

Amongst Indigenous Australians, “cancer” has negative connotations that detrimentally impact upon access to cancer care services. Barriers to accessing cancer services amongst Indigenous Australians are widely reported. In contrast, factors that facilitate this cohort to successfully navigate cancer...

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Autores principales: Tam, Laura, Garvey, Gail, Meiklejohn, Judith, Martin, Jennifer, Adams, Jon, Walpole, Euan, Fay, Michael, Valery, Patricia
Formato: Online Artículo Texto
Lenguaje:English
Publicado: MDPI 2018
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5800234/
https://www.ncbi.nlm.nih.gov/pubmed/29342934
http://dx.doi.org/10.3390/ijerph15010135
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author Tam, Laura
Garvey, Gail
Meiklejohn, Judith
Martin, Jennifer
Adams, Jon
Walpole, Euan
Fay, Michael
Valery, Patricia
author_facet Tam, Laura
Garvey, Gail
Meiklejohn, Judith
Martin, Jennifer
Adams, Jon
Walpole, Euan
Fay, Michael
Valery, Patricia
author_sort Tam, Laura
collection PubMed
description Amongst Indigenous Australians, “cancer” has negative connotations that detrimentally impact upon access to cancer care services. Barriers to accessing cancer services amongst Indigenous Australians are widely reported. In contrast, factors that facilitate this cohort to successfully navigate cancer care services (“enablers”) are scarcely reported in the literature. Through qualitative interviews, this article examines factors that assist Indigenous Australians to have positive cancer experiences. Semi-structured interviews were conducted with twelve adult Indigenous oncology patients recruited from a tertiary hospital in Queensland, Australia during 2012–2014. Data generated from the interviews were independently reviewed by two researchers via inductive thematic analytical processes. Discussions followed by consensus on the major categories allowed conclusions to be drawn on potential enablers. Two major categories of enablers were identified by the researchers: resilience and communication. Individual’s intrinsic strength, their coping strategies, and receipt of support improved participant’s resilience and consequently supported a positive experience. Communication methods and an effective patient-provider relationship facilitated positive experiences for participants. Despite potential barriers to access of care for Indigenous cancer patients, participants in the study demonstrated that it was still possible to focus on the positive aspects of their cancer experiences. Many participants explained how cancer changed their outlook on life, often for the better, with many feeling empowered as they progressed through their cancer diagnosis and treatment processes.
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spelling pubmed-58002342018-02-06 Exploring Positive Survivorship Experiences of Indigenous Australian Cancer Patients Tam, Laura Garvey, Gail Meiklejohn, Judith Martin, Jennifer Adams, Jon Walpole, Euan Fay, Michael Valery, Patricia Int J Environ Res Public Health Article Amongst Indigenous Australians, “cancer” has negative connotations that detrimentally impact upon access to cancer care services. Barriers to accessing cancer services amongst Indigenous Australians are widely reported. In contrast, factors that facilitate this cohort to successfully navigate cancer care services (“enablers”) are scarcely reported in the literature. Through qualitative interviews, this article examines factors that assist Indigenous Australians to have positive cancer experiences. Semi-structured interviews were conducted with twelve adult Indigenous oncology patients recruited from a tertiary hospital in Queensland, Australia during 2012–2014. Data generated from the interviews were independently reviewed by two researchers via inductive thematic analytical processes. Discussions followed by consensus on the major categories allowed conclusions to be drawn on potential enablers. Two major categories of enablers were identified by the researchers: resilience and communication. Individual’s intrinsic strength, their coping strategies, and receipt of support improved participant’s resilience and consequently supported a positive experience. Communication methods and an effective patient-provider relationship facilitated positive experiences for participants. Despite potential barriers to access of care for Indigenous cancer patients, participants in the study demonstrated that it was still possible to focus on the positive aspects of their cancer experiences. Many participants explained how cancer changed their outlook on life, often for the better, with many feeling empowered as they progressed through their cancer diagnosis and treatment processes. MDPI 2018-01-15 2018-01 /pmc/articles/PMC5800234/ /pubmed/29342934 http://dx.doi.org/10.3390/ijerph15010135 Text en © 2018 by the authors. Licensee MDPI, Basel, Switzerland. This article is an open access article distributed under the terms and conditions of the Creative Commons Attribution (CC BY) license (http://creativecommons.org/licenses/by/4.0/).
spellingShingle Article
Tam, Laura
Garvey, Gail
Meiklejohn, Judith
Martin, Jennifer
Adams, Jon
Walpole, Euan
Fay, Michael
Valery, Patricia
Exploring Positive Survivorship Experiences of Indigenous Australian Cancer Patients
title Exploring Positive Survivorship Experiences of Indigenous Australian Cancer Patients
title_full Exploring Positive Survivorship Experiences of Indigenous Australian Cancer Patients
title_fullStr Exploring Positive Survivorship Experiences of Indigenous Australian Cancer Patients
title_full_unstemmed Exploring Positive Survivorship Experiences of Indigenous Australian Cancer Patients
title_short Exploring Positive Survivorship Experiences of Indigenous Australian Cancer Patients
title_sort exploring positive survivorship experiences of indigenous australian cancer patients
topic Article
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5800234/
https://www.ncbi.nlm.nih.gov/pubmed/29342934
http://dx.doi.org/10.3390/ijerph15010135
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