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Telephone health services in the field of rare diseases: a qualitative interview study examining the needs of patients, relatives, and health care professionals in Germany

BACKGROUND: Rare diseases are, by definition, very serious and chronic diseases with a high negative impact on quality of life. Approximately 350 million people worldwide live with rare diseases. The resulting high disease burden triggers health information search, but helpful, high-quality, and up-...

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Detalles Bibliográficos
Autores principales:	Babac, Ana, Frank, Martin, Pauer, Frédéric, Litzkendorf, Svenja, Rosenfeldt, Daniel, Lührs, Verena, Biehl, Lisa, Hartz, Tobias, Storf, Holger, Schauer, Franziska, Wagner, Thomas O. F., Graf von der Schulenburg, J-Matthias
Formato:	Online Artículo Texto
Lenguaje:	English
Publicado:	BioMed Central 2018
Materias:	Research Article
Acceso en línea:	https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5807836/ https://www.ncbi.nlm.nih.gov/pubmed/29426339 http://dx.doi.org/10.1186/s12913-018-2872-9

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