Translating Biobank Science into Patient-Centered Language

Introduction: This project used Boot Camp Translation (BCT) to translate the complex medical jargon of biobanking into locally relevant evidence-based messages and materials to support increased knowledge and understanding in the local community. Methods: Biobank BCT was a partnership of 16 communit...

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Detalles Bibliográficos
Autores principales: Coors, Marilyn E., Westfall, Noah, Zittleman, Linda, Taylor, Matthew, Westfall, John M.
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Mary Ann Liebert, Inc. 2018
Materias:
Original Articles
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5808390/
https://www.ncbi.nlm.nih.gov/pubmed/29190122
http://dx.doi.org/10.1089/bio.2017.0089
Descripción
Sumario:Introduction: This project used Boot Camp Translation (BCT) to translate the complex medical jargon of biobanking into locally relevant evidence-based messages and materials to support increased knowledge and understanding in the local community. Methods: Biobank BCT was a partnership of 16 community members and 5 academic researchers. The partnership met for 8 months. Results: The partnership developed five main and seven submessages to assist patients and community members in making an informed decision about enrollment in a biobank. Discussion: The resulting messages balance an individual's right to privacy and choice, while encouraging participation for the greater good.

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